"Together is no longer completely together": Exploring the influence of social cognition problems on partner relationships following acquired brain injury.

IF 2.6 3区 医学 Q1 REHABILITATION
Brenda van den Broek, Jorn Muskens, Caroline van Heugten, Boudewijn Bus, Sophie Rijnen
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引用次数: 0

Abstract

Objective: To examine the experiences of individuals with acquired brain injury and their partners regarding the effects of social cognition problems on their relationships.

Design: Qualitative interview study.

Setting: Interviews were conducted 1 to 5 years post-injury, either in the participants' home or at a care facility in the Netherlands.

Participants: Nine couples consisting of an individual with acquired brain injury and a partner without acquired brain injury. Scores on neuropsychological tests indicated social cognition difficulties in individuals with acquired brain injury.

Methods: Individual semi-structured interviews were conducted, audio recorded, and transcribed verbatim. Two independent analysts analyzed the data using thematic analysis aimed at finding common themes across the data set. Data analysis was carried out recursively and parallel to data collection to help determine when saturation was reached.

Results: Six themes were generated from the interview data: (1) partners feeling disappointed, lonely, and despondent, (2) individuals with acquired brain injury feeling insecure and ashamed of falling short, (3) relationship roles changing, (4) the aggravating role of fatigue and sensory hypersensitivity, (5) the importance of professional help, and (6) silver linings: increased awareness creating closeness.

Conclusion: Social cognition problems have the potential to strongly affect relationships between those with acquired brain injury and their partners in many ways. Addressing social cognition problems is recommended as it is greatly appreciated by individuals with acquired brain injury and their partners and holds promise for improving their relationship.

“在一起不再是完全在一起”:探索获得性脑损伤后社会认知问题对伴侣关系的影响。
目的:探讨获得性脑损伤患者及其伴侣的社会认知问题对其人际关系的影响。设计:定性访谈研究。环境:访谈在受伤后1至5年进行,在参与者家中或在荷兰的护理机构进行。参与者:九对夫妇,其中一人有后天性脑损伤,另一人无后天性脑损伤。神经心理测试结果显示获得性脑损伤患者存在社会认知困难。方法:进行个人半结构化访谈,录音并逐字转录。两名独立的分析师使用主题分析分析数据,旨在找到数据集中的共同主题。数据分析与数据收集并行递归地进行,以帮助确定何时达到饱和。结果:从访谈数据中产生了六个主题:(1)伴侣感到失望、孤独和沮丧;(2)获得性脑损伤个体感到不安和羞愧;(3)关系角色转变;(4)疲劳和感觉超敏感的加重作用;(5)专业帮助的重要性;(6)希望:提高意识创造亲密关系。结论:社会认知问题有可能在许多方面强烈影响获得性脑损伤患者与其伴侣之间的关系。建议解决社会认知问题,因为它受到获得性脑损伤患者及其伴侣的极大赞赏,并有望改善他们的关系。
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来源期刊
Clinical Rehabilitation
Clinical Rehabilitation 医学-康复医学
CiteScore
5.60
自引率
6.70%
发文量
117
审稿时长
4-8 weeks
期刊介绍: Clinical Rehabilitation covering the whole field of disability and rehabilitation, this peer-reviewed journal publishes research and discussion articles and acts as a forum for the international dissemination and exchange of information amongst the large number of professionals involved in rehabilitation. This journal is a member of the Committee on Publication Ethics (COPE)
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