Factors That Affect the Quality of Life of Mothers Caring for Children With Medical Needs at Home: Cross-Sectional Questionnaire Study.

Q2 Nursing

AsianPacific Island Nursing Journal Pub Date : 2024-12-18 DOI:10.2196/63946

Kanako Nakamura, Yuko Hamada, Ayaka Fujita, Seiichi Morokuma

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Abstract

Background: The number of children requiring daily medical care is on the rise, with many being cared for at home. This situation places a significant burden on mothers, who often serve as the primary caregivers.

Objective: This study aimed to clarify the factors that affect the quality of life of mothers with children who require home health care.

Methods: A questionnaire study was conducted among mothers of children needing medical care at home, with 46 participants responding. The questionnaire included items regarding the child's condition, the mother's situation, and the World Health Organization Quality of Life-26scale.

Results: Factors influencing the quality of life of mothers included whether the child attended daycare or school (β=.274; P=.04), the duration of home care (β=.305; P=.02), and the presence or absence of position changes (β=-.410; P=.003). The presence or absence of position changes had the most significant impact (adjusted R²=.327).

Conclusions: The most significant factor affecting the quality of life of mothers of children requiring home medical care is the presence or absence of positional changes.

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影响在家照顾有医疗需要儿童的母亲生活质量的因素：横断面问卷研究。

背景：需要日常医疗护理的儿童数量正在上升，其中许多儿童在家中接受护理。这种情况给母亲带来了沉重的负担，她们往往是主要的照顾者。目的：本研究旨在阐明影响需要家庭保健的儿童母亲生活质量的因素。方法：采用问卷调查的方法，对有居家医疗需求的儿童的母亲进行调查，共有46人参与。问卷内容包括儿童状况、母亲状况和世界卫生组织生活质量26量表。结果：影响母亲生活质量的因素包括孩子是否参加日托或上学(β= 0.274；P=.04)、居家护理时间(β=.305；P=.02)，以及有无位置变化(β=- 0.410；P = .003)。位置变化的存在与否具有最显著的影响（调整后的R2=.327）。结论：影响需要居家医疗的患儿母亲生活质量的最重要因素是体位变化的存在与否。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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