Quality of Life of Pediatric Patients with Chronic Intestinal, Liver, and Pancreatic Diseases During the COVID-19 Pandemic.

IF 2.4 4区医学 Q2 HEALTH CARE SCIENCES & SERVICES

Healthcare Pub Date : 2024-11-29 DOI:10.3390/healthcare12232405

Irina Dijmărescu, Andreea Maria Iordache, Daniela Păcurar, Elena Roxana Matran, Alexandra Coroleucă, Cristina Adriana Becheanu

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Abstract

Background/objectives: Children with chronic diseases and their families face significant challenges to their quality of life compared to the rest of the population, and the COVID-19 pandemic has been a greater challenge for them. Our research aimed to identify key factors affecting their quality of life.

Methods: We conducted a cross-sectional study in the Department of Pediatrics of the "Grigore Alexandrescu" Emergency Children's Hospital in Bucharest on a group of 47 pediatric patients aged 9 years or older, diagnosed with chronic liver, gastrointestinal, and pancreatic diseases.

Results: Children reported that their quality of life was not significantly affected by the pandemic due to the inability to see their family members and friends (89.36%), online education (67.5%), and social distancing (50%). Results showed that parents' perceptions of the COVID-19 pandemic had a significant negative correlation with their quality of life (r = -0.35, p < 0.01); also, parents' perceptions of the quality of life had a high negative significant correlation with their children's mental well-being (r = -0.67, p < 0.001). Interestingly, children's mental well-being did not have a significant correlation with their perceptions of quality of life (r = -0.02, p > 0.05). In the context of the COVID-19 pandemic, parents were concerned about their family well-being. Parents with higher scores for the perception of COVID-19's impact tended to have lower scores for health-related quality of life. Also, the parents' quality of life accounted for 44% of the variance in their children's mental well-being.

Conclusions: Even if the medical issue of the COVID-19 pandemic was not a concern for either children or their parents, many families were anxious about the perceived lack of dependability of the medical system. Addressability was delayed in many cases because of this, and regular medical care is essential for patients with chronic diseases.

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背景/目标：与其他人群相比，患有慢性疾病的儿童及其家庭在生活质量方面面临着巨大的挑战，而 COVID-19 的流行对他们来说是一个更大的挑战。我们的研究旨在找出影响他们生活质量的关键因素：我们在布加勒斯特 "Grigore Alexandrescu "儿童急诊医院儿科进行了一项横断面研究，研究对象是 47 名被诊断患有慢性肝病、胃肠道疾病和胰腺疾病的 9 岁或以上儿童患者：儿童表示，由于无法见到家人和朋友（89.36%）、在线教育（67.5%）和社交疏远（50%），他们的生活质量并未受到大流行病的明显影响。结果显示，家长对 COVID-19 大流行的看法与他们的生活质量呈显著负相关（r = -0.35，p < 0.01）；同时，家长对生活质量的看法与他们子女的心理健康也呈高度负相关（r = -0.67，p < 0.001）。有趣的是，儿童的心理幸福感与他们对生活质量的看法没有明显的相关性（r = -0.02，p > 0.05）。在 COVID-19 大流行的背景下，家长对其家庭幸福感到担忧。对 COVID-19 的影响感知得分较高的家长，其与健康相关的生活质量得分往往较低。此外，父母的生活质量占子女心理健康差异的 44%：即使 COVID-19 大流行病的医疗问题并不是儿童或其父母所关心的问题，许多家庭也会因认为医疗系统缺乏可靠性而感到焦虑。因此，在许多情况下延误了治疗，而定期的医疗护理对于慢性病患者来说是至关重要的。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Healthcare Medicine-Health Policy

CiteScore

3.50

自引率

7.10%

发文量

审稿时长

47 days

期刊介绍： Healthcare (ISSN 2227-9032) is an international, peer-reviewed, open access journal (free for readers), which publishes original theoretical and empirical work in the interdisciplinary area of all aspects of medicine and health care research. Healthcare publishes Original Research Articles, Reviews, Case Reports, Research Notes and Short Communications. We encourage researchers to publish their experimental and theoretical results in as much detail as possible. For theoretical papers, full details of proofs must be provided so that the results can be checked; for experimental papers, full experimental details must be provided so that the results can be reproduced. Additionally, electronic files or software regarding the full details of the calculations, experimental procedure, etc., can be deposited along with the publication as “Supplementary Material”.