The Cardinal Glennon Children's Hospital Neurofibromatosis Clinic model.

Abstract

As subspecialty neurofibromatosis clinics and centers begin to appear in many parts of the United States and elsewhere in the world, it would be worthwhile for some of the earlier clinics to share their experiences in order to facilitate the more efficient establishment of similar clinics in as many locations as possible. In this report, emphasis is placed on the multidisciplinary nature of such a clinic, as well as on the primary roles of geneticists, neurologists, orthopedists, ophthalmologists, pediatricians, nurses and other consultants.