Challenges of regional hospice and palliative care networks: A group discussion study with coordinators and network experts.

IF 3.6 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Palliative Medicine Pub Date : 2025-02-01 Epub Date: 2024-12-11 DOI:10.1177/02692163241303281
Sven Schwabe, Hanna Aa Röwer, Christoph Buck, Eileen Doctor, Nils Schneider, Franziska A Herbst
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Abstract

Background: Within hospice and palliative care, professionals from various disciplines collaborate to deliver comprehensive care to terminal patients and their relatives. Regional hospice and palliative care networks exist in various countries, aimed at facilitating cooperation among health care providers at a local level. To date, little is known about the challenges faced by these networks.

Aim: This study aimed to explore the challenges faced by regional hospice and palliative care networks in Germany.

Design: A qualitative study with n = 6 group discussions was conducted. Group discussions were recorded, transcribed verbatim and analysed using qualitative content analysis.

Setting/participants: Participants were n = 19 coordinators or leaders of regional hospice and palliative care networks in Germany or persons with theoretical expertise about these structures.

Results: Regional hospice and palliative care networks face numerous challenges relating to: (1) establishment and development, (2) infrastructure, (3) moderation, (4) public relations and information exchange, (5) education and training and (6) the development of regional care services and practices. Network moderation appears crucial for network success and is highly dependent on infrastructural conditions. A key challenge is gaining network acceptance and support from potential network partners. Specifically, this includes securing the commitment of network partners to agree on common goals, develop joint actions and standards and allocate resources effectively.

Conclusions: Sustainable infrastructure, competent network governance and adequate resources for network members are essential for the success of regional hospice and palliative care networks. To improve networking, funding conditions should be simplified, the involvement of network partners should be improved and network coordinators should receive training in network management.

区域安宁疗护与缓和疗护网路的挑战:由协调员与网路专家组成的小组讨论研究。
背景:在临终关怀和姑息治疗中,来自不同学科的专业人员合作为临终病人及其亲属提供全面的护理。各国都有区域临终关怀和缓和护理网络,目的是促进地方一级保健提供者之间的合作。迄今为止,人们对这些网络所面临的挑战知之甚少。目的:本研究旨在探讨德国区域安宁疗护与缓和疗护网路所面临的挑战。设计:采用定性研究,共进行n = 6个小组讨论。小组讨论被记录下来,逐字转录,并使用定性内容分析进行分析。环境/参与者:参与者为19名德国区域安宁疗护和缓和疗护网络的协调员或领导者,或对这些结构具有理论专长的人士。结果:区域性安宁疗护与缓和疗护网络面临诸多挑战,包括:(1)建立与发展;(2)基础设施;(3)节制;(4)公共关系与资讯交流;(5)教育与培训;(6)区域疗护服务与实务的发展。网络节制似乎对网络的成功至关重要,并且高度依赖于基础设施条件。一个关键的挑战是获得网络的接受和潜在网络伙伴的支持。具体而言,这包括确保网络合作伙伴承诺就共同目标达成一致,制定联合行动和标准,并有效分配资源。结论:可持续的基础设施、有能力的网络治理和足够的网络成员资源是区域临终关怀和姑息治疗网络成功的关键。为改善联网,应简化供资条件,改善网络伙伴的参与,网络协调员应接受网络管理方面的培训。
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来源期刊
Palliative Medicine
Palliative Medicine 医学-公共卫生、环境卫生与职业卫生
CiteScore
7.60
自引率
9.10%
发文量
125
审稿时长
6-12 weeks
期刊介绍: Palliative Medicine is a highly ranked, peer reviewed scholarly journal dedicated to improving knowledge and clinical practice in the palliative care of patients with far advanced disease. This outstanding journal features editorials, original papers, review articles, case reports, correspondence and book reviews. Essential reading for all members of the palliative care team. This journal is a member of the Committee on Publication Ethics (COPE).
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