I Was Diagnosed, but There Was Nothing: A Parkinson's Patient's Perspective on the Reality of Korea.

Abstract

From the perspective of a Parkinson's patient, this paper aims to elucidate some of the unreasonable and difficult-to-understand realities in Korea, from diagnosis to treatment, with a view to improving the system and policies. Adequate procedures for furnishing information to patients following a diagnosis are lacking. To date, no websites have been established by doctors, public institutions, or the government to provide adequate information. This dearth of information creates a problematic situation that gives rise to patients receiving erroneous or misleading information, thereby wasting their time, financial resources, and ultimately, impacts their health. It is recommended that the government establish an authoritative organization to provide information about Parkinson's disease in order to prevent harm and promote non-motor and motor symptom treatments, such as psychotherapy, as demonstrated in the United States and the United Kingdom. In Korea, the Korea Parkinson Association, a nonprofit private organization, has initiated a campaign for understanding and consideration. With the support of the government and society, an environment can be created where people with Parkinson's disease can live with dignity as members of society.