Daniella San Martin-Feeney , Sophie Samborn , Brooke Allemang , Megan Patton , Zoya Punjwani , Ken Pfister , Laurel Ryan , Gregory M.T. Guilcher , Lorraine Hamiwka , Scott Klarenbach , Eddy Lang , Kerry McBrien , Alberto Nettel-Aguirre , Danièle Pacaud , Jorge Pinzon , Shannon D. Scott , Lonnie Zwaigenbaum , Curtis Perrott , John Andersen , Gail Andrew , Gina Dimitropoulos
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引用次数: 0
Abstract
Introduction
The transition from pediatric to adult care poses challenges for adolescents and young adults (AYA) with chronic conditions and their caregivers. A patient navigator (PN) intervention may mitigate transition-related barriers.
Methods
A qualitative study was conducted within a pragmatic randomized controlled trial. A purposive sample was recruited of AYA with diverse diagnostic and demographic characteristics who worked with the PN and/or their caregivers. Seventeen participants completed semi-structured interviews at baseline and post-intervention and optional journal entries. Thematic analysis was used inductively.
Results
Analysis yielded two themes from baseline interviews: 1) uncertainty and hesitation with leaving a place of support, 2) navigator assistance with post-secondary education, and three themes from post-intervention interviews: 1) emotional support, 2) informational and task-focused support, 3) navigator guidance to become more independent.
Discussion
Our findings describe the needs of AYA and the experience of PN support; our findings may guide future implementation of PNs in transition care.
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