Exploring the obstacles affecting the oral health of adolescents with intellectual disabilities: insights from maternal perspectives-a qualitative study.

Abstract

Background: Oral health plays a critical role in overall well-being, particularly among adolescents, including those with intellectual disabilities. Caregivers, particularly mothers, play an essential role in guiding and supporting these adolescents in maintaining good oral health. This study examined the oral health problems and challenges faced by children with intellectual disabilities from the perspective of their mothers.

Methods: Semi-structured interviews were conducted with 22 mothers of intellectually disabled adolescents aged 12-18 years in Pondicherry, India. A purposive sampling method was employed to gather information-rich insights from a diverse group of mothers. The interviews were guided by an interview protocol that included open-ended questions about the challenges in maintaining oral health, experiences with dental care providers, and perceived need for support. Thematic analysis was conducted to identify and interpret key themes.

Results: The study identified six key themes affecting the oral health of adolescents with intellectual disabilities from maternal perspectives: physical and behavior challenges, limited access to specialized dental care, financial constraints, lack of professional support and education, emotional and psychological impact on mothers, and social stigma and isolation.

Conclusion: The identified themes highlight the need for comprehensive and multifaceted interventions to address the physical, logistical, financial, educational, and emotional challenges. By understanding and addressing these barriers, healthcare providers, policymakers, and support organizations can improve oral health outcomes and the overall quality of life for adolescents with intellectual disabilities and their families.