The health information management professionals' role in supporting individuals considering genetic testing: An exploratory study.

Abstract

Background: An increasing number of people are exploring their genetic predisposition to many diseases, allowing them to make healthcare decisions with improved knowledge. Objectives: The aim of this study was to identify factors that influence individuals to consider genetic testing utilising a modified health belief model (HBM). Method: The authors tested the modified HBM using a convenience sample of individuals from across the United States after a pilot study was used to test the validity and reliability of the constructs. Using SmartPLS, the researchers determined that the modified HBM explains the decision-making process used to determine what influences individuals to consider genetic testing. Results: Results suggested that perceived susceptibility, perceived benefits, cues to action, self-efficacy, e-health literacy and normative belief all play a role in an individual's decision to test their genetics. Conclusion: By conducting genetic testing, individuals may benefit from knowing they are predisposed to certain cancers and other diseases. Yet, research results have indicated that most individuals are unaware of resources available online that will help them in understanding genetic test results and associated diseases. Implications: Since healthcare literacy is an issue reported by these individuals, health information management professionals are well qualified to support them in e-health literacy by assisting them to evaluate the trustworthiness of available resources, and to educate them about privacy rights regarding access to and protection of their genetic information.