Legal dissemination protections in community-based participatory health equity research.

IF 2.9 1区 哲学 Q1 ETHICS
Doris M Boutain, Marie-Anne Sanon Rosemberg, Eunjung Kim, Robin A Evans-Agnew
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引用次数: 0

Abstract

Background: There are legal protections for nurse researchers at public universities who employ community-based participatory research (CBPR) in research about social or health inequities. Dissemination of CBPR research data by researchers or participants may divulge unjust laws and create an imperative for university involvement.

Research question: What are United States-based legal dissemination protections for CBPR health equity nurse researchers?

Research design: Three case examples employing CBPR are examined: 1) a mixed methods study with participants reporting illegal discrimination in a municipal initiative about capacity building in community-based organizations serving children; 2) a visual methods study exposing potential clean air law violations in environmental justice research; and 3) a study examining workload violations and illegal discrimination among hotel workers.

Participants and research context: The cases involved participants from protected social class backgrounds. The research is described with respect to: background, funding, research purpose, and research team; research participants' power and legal vulnerability; dissemination of relevant research information balancing vulnerability and power; research dissemination issues; potential legal issues involved; and laws researchers may use.

Ethical considerations: IRB approval was obtained for the studies. Using a social justice ethical framework, studies highlight actual or potential legal aspects of data dissemination in the context of gathering data about injustice.

Findings: Legal protections for research data dissemination, whistleblower protection, research advancement protection, anti-harassment protection, false claims, defamation, and visual data liabilities are described.

Conclusion: Knowledge of legal research data dissemination protections is an essential competency for nurse researchers invested in uplifting social justice.

以社区为基础的参与式健康公平研究中的法律传播保护。
背景:公立大学的护士研究人员在研究社会或健康不平等问题时,如果采用基于社区的参与式研究(CBPR),会受到法律保护。研究人员或参与者传播 CBPR 研究数据可能会泄露不公正的法律,导致大学必须参与其中:研究设计:研究设计:研究了三个采用 CBPR 的案例:1)一项混合方法研究,参与者报告了一项关于社区儿童组织能力建设的市政倡议中的非法歧视行为;2)一项视觉方法研究,揭露了环境正义研究中潜在的违反清洁空气法的行为;3)一项研究,检查了酒店员工中违反工作量法和非法歧视的行为:这些案例涉及受保护社会阶层背景的参与者。研究内容包括:背景、资金、研究目的和研究团队;研究参与者的权力和法律弱势;相关研究信息的传播,平衡弱势和权力;研究传播问题;可能涉及的法律问题;以及研究人员可能使用的法律:研究已获得 IRB 批准。利用社会公正伦理框架,研究强调了在收集不公正数据时数据传播的实际或潜在法律问题:结论:对研究数据传播的法律保护、举报人保护、研究进步保护、反骚扰保护、虚假索赔、诽谤和视觉数据责任进行了描述:研究数据传播的法律保护知识是致力于提升社会正义的护士研究人员的一项基本能力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Nursing Ethics
Nursing Ethics 医学-护理
CiteScore
7.80
自引率
11.90%
发文量
117
审稿时长
6-12 weeks
期刊介绍: Nursing Ethics takes a practical approach to this complex subject and relates each topic to the working environment. The articles on ethical and legal issues are written in a comprehensible style and official documents are analysed in a user-friendly way. The international Editorial Board ensures the selection of a wide range of high quality articles of global significance.
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