Collecting sociodemographic data in primary care: Qualitative interviews in community health centers.

Abstract

Background: Many primary care organizations do not routinely collect sociodemographic data (SDD) such as race, gender, or income despite the importance of this data in addressing health disparities.

Aim: To understand the experiences of primary care providers and staff in collecting SDD.

Design & setting: A qualitative interview study with 33 primary care and interprofessional team members from eight Ontario Community Health Centres (CHCs).

Method: Semi-structured virtual interviews and content analysis of interview transcripts.

Results: Participants reported using both formal methods of SDD collection, and informal methods of SDD collection that were more organic, varied, and conducted over time. Participants discussed sometimes feeling uncomfortable collecting this data formally, as well as associated burden and limited resources to support collection. Client-provider rapport was noted as facilitating data collection and participants suggested more training, streamlined data collection, and better communication about purpose and use of data.

Conclusion: SDD can be collected informally or formally but there are limitations to informally collected data and barriers to the adoption of formal processes.