Caregiver burden and quality of life in palliative care: cross-sectional study.

IF 2 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES

BMJ Supportive & Palliative Care Pub Date : 2024-11-12 DOI:10.1136/spcare-2024-005220

Suhail K Shefeek, Teena Mary Joy, Jeby Jose Olickal, Malathu Abdulnazer Nezrin, Annie George, Kavumpurathu Raman Thankappan

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引用次数: 0

Abstract

Background: Literature on caregiver burden is limited in India and Kerala. We examined the prevalence and factors associated with caregiver burden and its impact on their quality of life.

Methods: We conducted a cross-sectional study among 115 informal caregivers (mean age 70 years, 80% female) of palliative care patients in Kerala. Caregivers were interviewed using the Zarit Burden Interview-22 and the WHOQOL-BREF questionnaires. Factors associated with caregiver burden were analysed using binary logistic regression.

Results: The prevalence of moderate to severe burden was 32.1% (95% CI 23.7% to 41.5%), with 6.2% reporting severe burden (95% CI 2.4% to 12.1%). Caregivers of patients aged ≥73 years (adjusted OR (aOR)=7.19, 95% CI 1.87 to 27.71, p=0.004), children acting as caregivers (aOR=11.09, 95% CI 1.21 to 101.03, p=0.033) and those caring for patients with prolonged disease duration (aOR=3.62, 95% CI 1.04 to 12.67, p=0.044) reported significantly higher burden compared with their counterparts. Moderate to severe burden was associated with lower physical (p<0.001), psychological (p<0.001) and social relations (p=0.002) quality of life scores.

Conclusion: Targeted interventions for caregivers of older patients, children acting as caregivers and those taking care of patients with prolonged disease duration are likely to reduce burden and improve their quality of life.

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姑息关怀中照护者的负担和生活质量：横断面研究。

背景：印度和喀拉拉邦有关照顾者负担的文献有限。我们研究了照顾者负担的发生率、相关因素及其对照顾者生活质量的影响：我们对喀拉拉邦 115 名姑息治疗患者的非正式护理者（平均年龄 70 岁，80% 为女性）进行了横断面研究。我们使用 Zarit 负担访谈-22 和 WHOQOL-BREF 问卷对照顾者进行了访谈。采用二元逻辑回归法分析了与照顾者负担相关的因素：结果：中度至重度负担的发生率为 32.1%（95% CI 为 23.7% 至 41.5%），其中 6.2% 为重度负担（95% CI 为 2.4% 至 12.1%）。年龄≥73岁患者的照顾者（调整后OR (aOR)=7.19, 95% CI 1.87至27.71, p=0.004）、作为照顾者的儿童（aOR=11.09, 95% CI 1.21至101.03, p=0.033）和病程较长患者的照顾者（aOR=3.62, 95% CI 1.04至12.67, p=0.044）的负担明显高于同龄人。中度至重度负担与较低的体力（p结论：对照顾者进行有针对性的干预，可以减轻他们的负担：对老年患者的照顾者、充当照顾者的儿童以及照顾病程较长患者的人进行有针对性的干预，很可能会减轻他们的负担并改善他们的生活质量。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

BMJ Supportive & Palliative Care Medicine-Medicine (miscellaneous)

CiteScore

4.60

自引率

7.40%

发文量

170

期刊介绍： Published quarterly in print and continuously online, BMJ Supportive & Palliative Care aims to connect many disciplines and specialties throughout the world by providing high quality, clinically relevant research, reviews, comment, information and news of international importance. We hold an inclusive view of supportive and palliative care research and we are able to call on expertise to critique the whole range of methodologies within the subject, including those working in transitional research, clinical trials, epidemiology, behavioural sciences, ethics and health service research. Articles with relevance to clinical practice and clinical service development will be considered for publication. In an international context, many different categories of clinician and healthcare workers do clinical work associated with palliative medicine, specialist or generalist palliative care, supportive care, psychosocial-oncology and end of life care. We wish to engage many specialties, not only those traditionally associated with supportive and palliative care. We hope to extend the readership to doctors, nurses, other healthcare workers and researchers in medical and surgical specialties, including but not limited to cardiology, gastroenterology, geriatrics, neurology, oncology, paediatrics, primary care, psychiatry, psychology, renal medicine, respiratory medicine.