Children with medical complexity in the emergency department: Parent experiences and information needs

IF 1.8 4区医学 Q2 NURSING

International Emergency Nursing Pub Date : 2024-11-07 DOI:10.1016/j.ienj.2024.101532

Danielle Lysak , Samina Ali , Susan Neufeld , Shannon Scott

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引用次数: 0

Abstract

Background

Children with complex medical needs constitute a growing number of pediatric patients that utilize the emergency department, disproportionately more than children outside of this category. Our objective for this qualitative study was to explore information needs and experiences of parents accessing emergency health care for their child with medical complexity.

Methods

Qualitative description guided this study. Parent participants were recruited via purposive sampling and individually interviewed within a pediatric specialty clinic at a Canadian pediatric tertiary care center. Inductive content analysis organized interview data from parents.

Results

Nine, 60–90 min individual interviews were conducted with parents of a child with medical complexity; four content categories emerged: How the emergency department is different for children with medical complexity, parents as key care coordinators, emergency department experience and resilience, and communication and learning preferences.

Conclusion

These families openly shared their experience with pediatric emergency care. Strategies to support transfer of pertinent health information for children with complex medical needs are needed in the emergency department. Interviews with parents of children with complex medical needs provided key insights to inform and improve the care provided in the emergency department for this growing population of children.

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在急诊科就诊的病情复杂的儿童：家长的经历和信息需求。

背景：在使用急诊科的儿科病人中，有复杂医疗需求的儿童人数越来越多，比其他类别的儿童多得多。我们进行这项定性研究的目的是，探索父母在为病情复杂的儿童提供急诊医疗服务时的信息需求和经验：方法：本研究以定性描述为指导。我们通过有目的的抽样调查招募了参与研究的家长，并在加拿大一家儿科三级医疗中心的儿科专科门诊对他们进行了单独访谈。归纳内容分析整理了来自家长的访谈数据：共进行了 9 次 60-90 分钟的个别访谈，访谈对象为一名病情复杂的儿童的家长；访谈内容分为四类：急诊科对于病情复杂儿童有何不同、家长是关键的护理协调者、急诊科的经验和应变能力以及沟通和学习偏好：这些家庭公开分享了他们在儿科急诊护理方面的经验。急诊科需要为有复杂医疗需求的儿童制定支持相关健康信息传递的策略。对有复杂医疗需求儿童的家长进行的访谈提供了重要的见解，为急诊科为这一日益增长的儿童群体提供信息和改善护理提供了依据。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

International Emergency Nursing NURSING-

CiteScore

3.20

自引率

11.10%

发文量

期刊介绍： International Emergency Nursing is a peer-reviewed journal devoted to nurses and other professionals involved in emergency care. It aims to promote excellence through dissemination of high quality research findings, specialist knowledge and discussion of professional issues that reflect the diversity of this field. With an international readership and authorship, it provides a platform for practitioners worldwide to communicate and enhance the evidence-base of emergency care. The journal publishes a broad range of papers, from personal reflection to primary research findings, created by first-time through to reputable authors from a number of disciplines. It brings together research from practice, education, theory, and operational management, relevant to all levels of staff working in emergency care settings worldwide.