A qualitative exploration of participants' perspectives and experiences of novel digital health infrastructure to enhance patient care in remote communities within the Home Health Project.

Madeleine Kearney, Leona Ryan, Rory Coyne, Hemendra Worlikar, Ian McCabe, Jennifer Doran, Peter J Carr, Jack Pinder, Seán Coleman, Cornelia Connolly, Jane C Walsh, Derek O'Keeffe
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Abstract

The Home Health Project, set on Clare Island, five kilometres off the Irish Atlantic coast, is a pilot exploration of ways in which various forms of technology can be utilised to improve healthcare for individuals living in isolated communities. The integration of digital health technologies presents enormous potential to revolutionise the accessibility of healthcare systems for those living in remote communities, allowing patient care to function outside of traditional healthcare settings. This study aims to explore the personal experiences and perspectives of participants who are using digital technologies in the delivery of their healthcare as part of the Home Health Project. Individual semi-structured interviews were conducted with nine members of the Clare Island community participating in the Home Health Project. Interviews took place in-person, in June 2023. Interviews were audio-recorded and transcribed verbatim. The data were analysed inductively using reflexive thematic analysis. To identify determinants of engagement with the Home Health Project, the data was then deductively coded to the Theoretical Domains Framework (TDF) and organised into themes. Seven of the possible 14 TDF domains were supported by the interview data as influences on engagement with the Project: Knowledge, Beliefs about capabilities, Optimism, Intentions, Environmental context and resources, Social influences and Emotion. Overall, participants evaluated the Home Health Project as being of high quality which contributed to self-reported increases in health literacy, autonomy, and feeling well supported in having their health concerns addressed. There was some apprehension related to data protection, coupled with a desire for extended training to address aspects of digital illiteracy. Future iterations can capitalise on the findings of this study by refining the technologies to reflect tailored health information, personalised to the individual user.

在家庭保健项目中,对参与者对新型数字医疗基础设施的看法和体验进行定性探索,以加强偏远社区的病人护理。
家庭保健项目位于距离爱尔兰大西洋海岸五公里的克莱尔岛上,是一项试点探索,研究如何利用各种形式的技术来改善偏远社区居民的医疗保健。数字医疗技术的整合带来了巨大的潜力,可以彻底改变偏远社区居民对医疗系统的可及性,使病人护理在传统医疗机构之外发挥作用。本研究旨在探讨作为家庭医疗项目一部分的参与者在使用数字技术提供医疗服务时的个人经历和观点。本研究对参与家庭保健项目的九名克莱尔岛社区成员进行了个人半结构化访谈。访谈于 2023 年 6 月亲自进行。对访谈进行了录音和逐字记录。采用反思性主题分析法对数据进行归纳分析。为确定参与家庭健康项目的决定因素,然后根据理论领域框架(TDF)对数据进行演绎编码,并组织成主题。在可能的 14 个 TDF 领域中,有 7 个得到了访谈数据的支持,成为影响参与该项目的因素:知识、能力信念、乐观、意向、环境和资源、社会影响和情感。总体而言,参与者对家庭健康项目的评价是高质量的,这有助于提高他们的健康知识水平、自主性,以及在解决他们的健康问题时感受到良好的支持。在数据保护方面存在一些顾虑,同时也希望扩大培训范围,以解决数字文盲问题。未来的迭代可以利用这项研究的结果,改进技术,以反映量身定制的健康信息,为个人用户提供个性化服务。
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