[Challenges and good practices of regional hospice and palliative care networks in Germany: Results of an online survey].

Abstract

Regional hospice and palliative care networks (RHPCN) can help improve collaboration between health care providers in order to provide comprehensive care for seriously ill patients and their families in the last stages of life. In Germany, RHPCNs are eligible for funding by statutory health insurers from 2022 under Section 39 d SGB V. What are the challenges RHCPNs face and what good practices have emerged in their work?As part of the project HOPAN (German Innovation Fund of the Federal Joint Committee [G-BA], grant N° 01VSF22042), an online survey was conducted among RHPCNs in Germany between December 2023 and February 2024. The survey explored challenges and good practices in six areas of network work. Quantitative data was analysed using a frequency analysis with the statistical software SPSS (closed questions). Free text answers were openly coded using MAXQDA 2022.A total response rate of n=408 data sets was achieved, of which n=64 data sets were included in the analysis after plausibility checks and data cleaning. The most significant challenges facing RHPCNs were the lack of awareness of the network among the general public (n=39; 60.9%) and care providers (n=27; 42.2%), varying qualifications and quality standards of network partners (n=31; 48.2%), and acquisition of new network partners (n=27; 42.2%). The most frequently mentioned good practices were appreciative, transparent, and regular communication (n=41; 50.6%), a personal approach to new network partners (n=38; 28.3%), and attractive network activities (n=33; 25.2%).Many RHPCNs are currently encountering challenges in establishing and expanding their network infrastructure. The implementation of effective network moderation and delivery of high-quality network activities can enhance the reach of RHPCNs. Joint training and further education, in addition to the development of regional care practices and standards, require a high level of commitment from the network partners, which is not yet the case in many instances.