Identifying the need for a nurse-driven palliative care intervention for American Indian and rural family caregivers.

IF 1.2 4区医学 Q3 FAMILY STUDIES

Families Systems & Health Pub Date : 2024-10-21 DOI:10.1037/fsh0000931

Madison Fitch, Sarah Mollman, Brandon M Varilek

{"title":"Identifying the need for a nurse-driven palliative care intervention for American Indian and rural family caregivers.","authors":"Madison Fitch, Sarah Mollman, Brandon M Varilek","doi":"10.1037/fsh0000931","DOIUrl":null,"url":null,"abstract":"Objective: The purpose of this qualitative study was to understand the needs of family caregivers (FCGs) from the perspectives of health care professionals delivering cancer care to American Indian and rural populations.Method: A descriptive content analysis of 18 interviews with multidisciplinary health care professionals delivering cancer care at a rural cancer institute in the Great Plains region was conducted.Results: We identified three themes: access, support, and awareness with six subthemes. Consideration of these core needs, coupled with the individual cultural circumstance, is critical in addressing disparities faced by American Indian/Alaska Native and rural FCGs.Conclusions: The availability of specialized health care services, like palliative care, can positively impact the experience of FCGs providing care. However, access is limited. The needs and challenges faced by American Indian/Alaska Native and rural FCGs described in this study can inform the development of a culturally responsive palliative care intervention. Nurses are well positioned to develop and lead this intervention, which will be the first of its kind. (PsycInfo Database Record (c) 2024 APA, all rights reserved).","PeriodicalId":55612,"journal":{"name":"Families Systems & Health","volume":" ","pages":""},"PeriodicalIF":1.2000,"publicationDate":"2024-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Families Systems & Health","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1037/fsh0000931","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"FAMILY STUDIES","Score":null,"Total":0}

引用次数: 0

Abstract

Objective: The purpose of this qualitative study was to understand the needs of family caregivers (FCGs) from the perspectives of health care professionals delivering cancer care to American Indian and rural populations.

Method: A descriptive content analysis of 18 interviews with multidisciplinary health care professionals delivering cancer care at a rural cancer institute in the Great Plains region was conducted.

Results: We identified three themes: access, support, and awareness with six subthemes. Consideration of these core needs, coupled with the individual cultural circumstance, is critical in addressing disparities faced by American Indian/Alaska Native and rural FCGs.

Conclusions: The availability of specialized health care services, like palliative care, can positively impact the experience of FCGs providing care. However, access is limited. The needs and challenges faced by American Indian/Alaska Native and rural FCGs described in this study can inform the development of a culturally responsive palliative care intervention. Nurses are well positioned to develop and lead this intervention, which will be the first of its kind. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

查看原文本刊更多论文

确定美国印第安人和农村家庭照顾者对以护士为主导的姑息关怀干预的需求。

研究目的本定性研究旨在从为美国印第安人和农村人口提供癌症护理的医疗保健专业人员的角度了解家庭照顾者（FCGs）的需求：方法：对在大平原地区一家农村癌症研究所提供癌症治疗的多学科医护人员进行的 18 次访谈进行了描述性内容分析：结果：我们确定了三个主题：获取、支持和意识，以及六个次主题。考虑到这些核心需求以及个人的文化背景，对于解决美国印第安人/阿拉斯加原住民和农村家庭小组面临的差异问题至关重要：结论：专业医疗服务（如姑息关怀）的可用性可对提供关怀的家庭护理小组的体验产生积极影响。然而，获得这些服务的途径是有限的。本研究中描述的美国印第安人/阿拉斯加原住民和农村家庭小组所面临的需求和挑战，可以为制定文化适应性姑息关怀干预措施提供参考。护士完全有能力开发和领导这一干预措施，这将是此类干预措施的首创。(PsycInfo Database Record (c) 2024 APA，保留所有权利）。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Families Systems & Health HEALTH CARE SCIENCES & SERVICES-PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

CiteScore

1.50

自引率

7.70%

发文量

审稿时长

>12 weeks

期刊介绍： Families, Systems, & Health publishes clinical research, training, and theoretical contributions in the areas of families and health, with particular focus on collaborative family healthcare.