End-of-life doulas: A systematic integrative review and redirection.

IF 4.6 2区医学 Q1 GERONTOLOGY

Gerontologist Pub Date : 2024-10-15 DOI:10.1093/geront/gnae144

Amber D Thompson, Rebecca L Utz

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引用次数: 0

Abstract

Background and objectives: End-of-life doulas (EOLD) are an emerging role providing non-medical support and advocacy for the dying and their families. Research about EOLD is new and currently highlights a need for more clarity in role definition and application. This review aims to comprehensively analyze existing knowledge regarding EOLD and their role in end-of-life care.

Research design and methods: A systematic and comprehensive search of nine bibliographic databases identified all published academic articles related to EOLD (as named, self-identified, and/or trained) research from inception to June 2023. This review utilized an integrative approach and textual narrative synthesis to summarize the existing body of research findings related to EOLD.

Results: Twenty-five articles were identified, representing multiple disciplines including health and medicine, public health, social/behavioral sciences, and humanities. Research on EOLD has rapidly increased in recent years and is showing signs of maturation. The review focuses specifically on summarizing the breadth and depth of identified research on EOLD and critically analyzes emergent themes from the review: Application, Perception, Identity, and Future Research Directions.

Discussion and implications: This review provides the most comprehensive review of the research literature on EOLD to date. Thematic findings for future research directions have provided the basis of a redirected research agenda to guide the field going forward. There is still a need to clarify who EOLD are and how they are being conceptualized by multiple stakeholders. Future research must address these missing voices to fully grasp the value and unique role that EOLD contribute to EOL care.

查看原文本刊更多论文

临终陪护：系统性综合审查和重新定向。

背景和目标：临终陪护（EOLD）是一种新兴的角色，为临终者及其家人提供非医疗支持和宣传。有关临终陪伴者的研究是一项新工作，目前需要进一步明确临终陪伴者的角色定义和应用。本综述旨在全面分析有关临终关怀的现有知识及其在临终关怀中的作用：对九个文献数据库进行了系统而全面的检索，确定了从开始到 2023 年 6 月所有已发表的与 EOLD（命名、自我认定和/或训练）研究相关的学术文章。本综述采用了综合方法和文字叙述综合法来总结与 EOLD 相关的现有研究成果：结果：确定了 25 篇文章，代表了多个学科，包括健康与医学、公共卫生、社会/行为科学和人文科学。近年来，有关 EOLD 的研究迅速增加，并呈现出成熟的迹象。本综述特别侧重于总结已确定的 EOLD 研究的广度和深度，并对综述中出现的主题进行批判性分析：讨论和影响：本综述是迄今为止最全面的 EOLD 研究文献综述。关于未来研究方向的主题发现为重新制定研究议程提供了基础，以指导该领域的发展。仍有必要澄清 EOLD 是什么，以及多方利益相关者是如何将其概念化的。未来的研究必须解决这些缺失的声音，以充分把握 EOLD 对临终关怀的价值和独特作用。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Gerontologist GERONTOLOGY-

CiteScore

11.00

自引率

8.80%

发文量

171

期刊介绍： The Gerontologist, published since 1961, is a bimonthly journal of The Gerontological Society of America that provides a multidisciplinary perspective on human aging by publishing research and analysis on applied social issues. It informs the broad community of disciplines and professions involved in understanding the aging process and providing care to older people. Articles should include a conceptual framework and testable hypotheses. Implications for policy or practice should be highlighted. The Gerontologist publishes quantitative and qualitative research and encourages manuscript submissions of various types including: research articles, intervention research, review articles, measurement articles, forums, and brief reports. Book and media reviews, International Spotlights, and award-winning lectures are commissioned by the editors.