An mHealth App to Support Caregivers in the Medical Management of Their Child With Cancer: Beta Stage Usability Study.

IF 3.3 Q2 ONCOLOGY
JMIR Cancer Pub Date : 2024-10-17 DOI:10.2196/52128
Emily L Mueller, Anneli R Cochrane, Madison E Campbell, Sarah Nikkhah, Richard J Holden, Andrew D Miller
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引用次数: 0

Abstract

Background: Previous research demonstrated that caregivers of children with cancer desired a mobile health (mHealth) tool to aid them in the medical management of their child. Prototyping and alpha testing of the Cope 360 app (Commissioning Agents, Inc) resulted in improvements in the ability to track symptoms, manage medications, and prepare for urgent medical needs.

Objective: This study aims to engage caregivers of children with cancer in beta testing of a smartphone app for the medical management of children with cancer, assess acceptance, identify caregivers' perceptions and areas for improvement, and validate the app's design concepts and use cases.

Methods: In this pilot, study caregivers of children with cancer used the Cope 360 mHealth app for 1 week, with the goal of daily logging. Demographics and a technology acceptance survey were obtained from each participant. Recorded semistructured interviews were transcribed and analyzed iteratively using NVivo (version 12, QSR International) and analyzed for information on usage, perceptions, and suggestions for improvement.

Results: A total of 10 caregivers participated in beta testing, primarily women (n=8, 80%), married, with some college education, and non-Hispanic White (n=10, 100%). The majority of participants (n=7, 70%) had children with acute lymphocytic leukemia who were being treated with chemotherapy only (n=8, 80%). Overall, participants had a favorable opinion of Cope 360. Almost all participants (n=9, 90%) believed that using the app would improve their ability to manage their child's medical needs at home. All participants reported that Cope 360 was easy to use, and most would use the app if given the opportunity (n=8, 80%). These values indicate that the app had a high perceived ease of use with well-perceived usefulness and behavioral intention to use. Key topics for improvement were identified including items that were within the scope of change and others that were added to a future wish list. Changes that were made based on caregiver feedback included tracking or editing all oral and subcutaneous medications and the ability to change the time of a symptom tracked or medication administered if unable to do so immediately. Wish list items included adding a notes section, monitoring skin changes, weight and nutrition tracking, and mental health tracking.

Conclusions: The Cope 360 app was well received by caregivers of children with cancer. Our validation testing suggests that the Cope 360 app is ready for testing in a randomized controlled trial to assess outcome improvements.

支持护理人员对癌症患儿进行医疗管理的移动医疗应用程序:测试阶段可用性研究
背景:先前的研究表明,癌症患儿的看护者希望有一种移动医疗(mHealth)工具来帮助他们对患儿进行医疗管理。Cope 360 应用程序(Commissioning Agents, Inc)的原型设计和阿尔法测试提高了追踪症状、管理药物和准备紧急医疗需求的能力:本研究旨在让癌症患儿的护理人员参与一款用于癌症患儿医疗管理的智能手机应用程序的测试,评估接受程度,确定护理人员的看法和需要改进的地方,并验证应用程序的设计理念和使用案例:在此次试验中,癌症儿童的护理人员使用 Cope 360 移动医疗应用程序一周,目标是每天记录。从每位参与者那里获得了人口统计数据和技术接受度调查。使用 NVivo(第 12 版,QSR International)对记录的半结构式访谈进行转录和反复分析,并对使用情况、看法和改进建议等信息进行分析:共有 10 名护理人员参与了测试,她们主要是女性(8 人,占 80%)、已婚、受过一定的大学教育、非西班牙裔白人(10 人,占 100%)。大多数参与者(7 人,占 70%)的孩子患有急性淋巴细胞白血病,仅接受化疗(8 人,占 80%)。总体而言,参与者对科普 360 的评价良好。几乎所有参与者(人数=9,90%)都认为,使用该应用程序将提高他们在家管理孩子医疗需求的能力。所有参与者都表示 Cope 360 易于使用,如果有机会,大多数人都会使用该应用程序(8 人,80%)。这些数值表明,该应用程序具有很高的易用性、实用性和行为使用意愿。我们确定了需要改进的关键主题,包括属于修改范围的项目和其他添加到未来愿望清单中的项目。根据护理人员的反馈意见所做的更改包括跟踪或编辑所有口服和皮下注射药物,以及在无法立即更改症状跟踪时间或用药时间的情况下更改用药时间的功能。希望清单项目包括增加备注部分、监测皮肤变化、体重和营养跟踪以及心理健康跟踪:Cope 360 应用程序深受癌症儿童护理人员的欢迎。我们的验证测试表明,Cope 360 应用程序可以在随机对照试验中进行测试,以评估结果的改善情况。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
JMIR Cancer
JMIR Cancer ONCOLOGY-
CiteScore
4.10
自引率
0.00%
发文量
64
审稿时长
12 weeks
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