230P Physiotherapy for rare hereditary NMDs- an open and free e-learning course for physiotherapists. Results after 18 months online at sjelden.no

Abstract

Physiotherapy is an important modality for patients with neuromuscular disorders, as individually targeted physiotherapy approaches may enhance functions in daily life, and thereby affect quality of life. In Norway, there is scarce knowledge of physiotherapy for neuromuscular patients among physiotherapists (PTs). The PTs at the National Neuromuscular Centre, Norway (NMK), saw the need for the development of free and easily attainable learning resources to empower PTs at hospitals and in communities in their clinical reasoning process. A service development project was conducted, resulting in an e-learning course published at the Norwegian learning platform sjelden.no. The e-learning course was developed in close collaboration with sjelden.no, a learning platform for rare diseases funded by Norwegian National Advisory Unit on Rare Disorders (NKSD). The project period ran from 2018-2022. The course is presented in written and spoken Norwegian and consists of five modules. 1) Introduction 2) Human movement- from healthy to muscle disease 3) Examples of movement analysis of patients 4) Intervention examples 5) Course test with 15 multiple choice questions. The course was published in Sep.2022. Information and advertisement has been provided from NMK at national and international conferences, on NMK's SoMe-platforms and website, and at clinical courses for PTs in Norway. From September 2022-March 2024, the e-learning course has had 2209 users and 3772 views based on statistics from Google Analytics. This is the 3rd most visited learning resource at sjelden.no. The introductory video has 400 full-length finishes, while 120 PTs has passed the course-test. The e-learning course has good statistics of use by Norwegian PTs when looking at users, views and completion of the course test. To enhance the sharing of evidence-based physiotherapy for NMD-patients to PTs, a digital course thus seems to be a cost-effective and potent tool. To enable availability for an international audience, translation to English with publishing through sjelden.no and ERN Euro-NMD is planned for 2024-2025.