The evaluation of daily activity questionnaire for stroke survivors: cross-cultural adaptation, content validity and digitisation

IF 3.1 3区医学 Q1 REHABILITATION

Physiotherapy Pub Date : 2024-09-12 DOI:10.1016/j.physio.2024.101427

Nazemin Gilanliogullari , Sarah Prenton , Yeliz Prior

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引用次数: 0

Abstract

Objective

The study's objective was to culturally adapt and digitise the Evaluation of Daily Activity Questionnaire (EDAQ), originally designed for rheumatoid arthritis and various other musculoskeletal conditions, creating a version for stroke survivors (EDAQ-SS). This adaptation also aimed to develop a comprehensive electronic Patient Reported Outcome Measure (ePROM) intended to refine stroke survivors' self-assessment of their daily activity limitations.

Materials and methods

Cross-cultural adaptation of the EDAQ was completed by a review of expert panel, which included healthcare professionals to increase the clarity and relevancy of the items, followed by cognitive debriefing interviews with British stroke survivors to rate their understanding of the questionnaire items. After developing the paper version of the questionnaire, this was digitised (eEDAQ-SS) and disseminated online via the Stroke Survivors Hub (SSHUB). Content validity of the EDAQ-SS was evaluated using the International Classification of Functioning (ICF) Core Set for Stroke.

Results

The expert panel meeting (n:11) and cognitive debriefing interviews with stroke survivors (n:10) resulted in an EDAQ-SS with 160 items across 15 domains, which was understandable and relevant to stroke survivors. The SSHUB was deemed to be a user-friendly platform, providing easy access to eEDAQ-SS and aid self-assessment of daily activities of stroke survivors. Mapping the EDAQ-SS items to the ICF Core Set for Stroke demonstrated good content validity with 44/55 matching categories.

Conclusion

The EDAQ-SS offers a comprehensive measure for self-assessment, which may serve to guide stroke survivors’ self-management by overcoming limitations of existing PROMs. Further psychometric testing of the EDAQ-SS and wider testing of the digital version is recommended.

Contribution of the Paper

•
The Evaluation of daily activity questionnaire for stroke survivors (EDAQ-SS) is a culturally adapted, comprehensive PROM for British stroke survivors, enhancing self-assessment of daily activities.
•
Methodically developed using guidelines, expert feedback, and stroke survivor interviews, the EDAQ-SS ensures relevance and clarity.
•
The EDAQ-SS demonstrates good content validity against the International Classification of Functioning Core Set for Stroke, with potential to improve clinical practice by providing a detailed, sensitive measure to help stroke survivors and healthcare professionals identify and manage daily activity limitations more effectively.

查看原文本刊更多论文

中风幸存者日常活动问卷评估：跨文化适应性、内容有效性和数字化。

研究目的该研究的目的是对最初为类风湿性关节炎和其他各种肌肉骨骼疾病而设计的 "日常活动评估问卷"（EDAQ）进行文化改编和数字化，并创建一个适合中风幸存者的版本（EDAQ-SS）。这一改编还旨在开发一个全面的电子患者报告结果测量（ePROM），以完善中风幸存者对其日常活动限制的自我评估：EDAQ 的跨文化改编由专家小组（包括医护人员）审查完成，以提高项目的清晰度和相关性，随后对英国中风幸存者进行认知汇报访谈，以评价他们对问卷项目的理解程度。在开发出纸质版问卷后，将其数字化（eEDAQ-SS），并通过中风幸存者中心（SSHUB）进行在线传播。采用国际功能分类（ICF）脑卒中核心内容对 EDAQ-SS 的内容有效性进行了评估：专家小组会议（11 人）和与中风幸存者的认知汇报访谈（10 人）得出的 EDAQ-SS 包含 160 个项目，横跨 15 个领域，对中风幸存者来说易于理解且具有相关性。SSHUB 被认为是一个用户友好型平台，可以方便地访问 eEDAQ-SS 并帮助中风幸存者对日常活动进行自我评估。将 EDAQ-SS 项目映射到 ICF 中风核心组显示出良好的内容有效性，44/55 个类别相匹配：结论：EDAQ-SS 为自我评估提供了一种全面的测量方法，克服了现有 PROM 的局限性，可为卒中幸存者的自我管理提供指导。建议进一步对 EDAQ-SS 进行心理测试，并对数字版本进行更广泛的测试。本文的贡献

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Physiotherapy 医学-康复医学

CiteScore

6.40

自引率

3.00%

发文量

377

审稿时长

82 days

期刊介绍： Physiotherapy aims to publish original research and facilitate continuing professional development for physiotherapists and other health professions worldwide. Dedicated to the advancement of physiotherapy through publication of research and scholarly work concerned with, but not limited to, its scientific basis and clinical application, education of practitioners, management of services and policy. We are pleased to receive articles reporting original scientific research, systematic reviews or meta-analyses, theoretical or debate articles, brief reports and technical reports. All papers should demonstrate methodological rigour.