Knowledge, attitude and acceptance regarding bone marrow transplantation in caregivers of beta-thalassemia major patients.

IF 1.5 Q4 GENETICS & HEREDITY

Journal of Community Genetics Pub Date : 2024-10-11 DOI:10.1007/s12687-024-00739-2

Purva Reddy Jayaram, Sahana Devadas, Paridhi Jain, Gayathri Devi C

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Abstract

Objective: Knowledge, Attitude, and Acceptance regarding Bone marrow transplantation in caregivers of beta-thalassemia major patients.

Methods: A cross-sectional study was conducted among the caregivers of pediatric patients with betathalassemia major in blood transfusion centres in Bangalore, India. Their knowledge, attitude, and acceptance regarding bone marrow transplantation were assessed using a validated questionnaire. The study aimed to identify factors that influence caregivers' decision about bone marrow transplantation.

Results: The knowledge, attitude, and acceptance of the caregivers towards bone marrow transplantation are shown to depend on gender, education and socio-economic status. The results of this study reveal that male caregivers generally exhibited higher levels of knowledge and had a better attitude towards it as compared to their female counterparts. Higher education and socio-economic status were associated with better knowledge, more favourable attitudes and a higher acceptance towards the procedure.

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重型地中海贫血患者护理人员对骨髓移植的认识、态度和接受程度。

目标：β-地中海贫血重症患者护理人员对骨髓移植的了解、态度和接受程度：重型地中海贫血患者护理人员对骨髓移植的了解、态度和接受程度：对印度班加罗尔输血中心的重型地中海贫血儿科患者护理人员进行了一项横断面研究。研究使用一份经过验证的调查问卷评估了他们对骨髓移植的认识、态度和接受程度。研究旨在找出影响照顾者决定骨髓移植的因素：结果：护理人员对骨髓移植的认识、态度和接受程度取决于性别、教育程度和社会经济地位。研究结果表明，与女性护理人员相比，男性护理人员对骨髓移植的知识水平和态度普遍较高。教育程度和社会经济地位越高，对该程序的了解越多，态度越积极，接受度越高。

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来源期刊

Journal of Community Genetics GENETICS & HEREDITY-

CiteScore

3.30

自引率

5.30%

发文量

期刊介绍： The Journal of Community Genetics is an international forum for research in the ever-expanding field of community genetics, the art and science of applying medical genetics to human communities for the benefit of their individuals. Community genetics comprises all activities which identify persons at increased genetic risk and has an interest in assessing this risk, in order to enable those at risk to make informed decisions. Community genetics services thus encompass such activities as genetic screening, registration of genetic conditions in the population, routine preconceptional and prenatal genetic consultations, public education on genetic issues, and public debate on related ethical issues. The Journal of Community Genetics has a multidisciplinary scope. It covers medical genetics, epidemiology, genetics in primary care, public health aspects of genetics, and ethical, legal, social and economic issues. Its intention is to serve as a forum for community genetics worldwide, with a focus on low- and middle-income countries. The journal features original research papers, reviews, short communications, program reports, news, and correspondence. Program reports describe illustrative projects in the field of community genetics, e.g., design and progress of an educational program or the protocol and achievement of a gene bank. Case reports describing individual patients are not accepted.