The healthcare experience of young stroke survivors: an interpretative phenomenological study.

IF 2.1 4区医学 Q1 REHABILITATION

Disability and Rehabilitation Pub Date : 2024-10-06 DOI:10.1080/09638288.2024.2410989

Claire Thompson, Simon Andrew Moss, Mary-Ellen Hooper, Ella Kurz, Elyse Ladbrook, Mary Bushell

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引用次数: 0

Abstract

Purpose: While stroke is becoming increasingly prevalent in young people (<65 years), diagnosis, treatment, rehabilitation, and management continue to reflect the needs of older people. This study aimed to characterise and appreciate the healthcare experiences of young stroke survivors, whose needs and trajectories differ from those of older people.

Materials and methods: Qualitative in-depth semi-structured interviews were conducted with 11 stroke survivors aged 18-49 using virtual conferencing software. The data were analysed using interpretative phenomenological analysis.

Results: Four main themes were identified that reflect the experiences and needs of young stroke survivors and are (1) The health system overlooks the experiences and needs of young stroke survivors; (2) Support is fragmented rather than holistic; (3) Feelings of helplessness at a time agency is required; and (4) Positive attitudes despite challenges.

Conclusions: The experiences of young stroke survivors are distinct. Health services that consider the unique trajectories of young stroke survivors will better facilitate rehabilitation and support for this population.

查看原文本刊更多论文

年轻中风幸存者的医疗保健经历：一项解释性现象学研究。

目的：虽然中风在年轻人中越来越普遍（材料和方法：使用虚拟会议软件对 11 名年龄在 18-49 岁之间的中风幸存者进行了半结构化定性深度访谈。采用解释现象学分析法对数据进行了分析：结果：确定了四个反映年轻中风幸存者经历和需求的主题，分别是：（1）医疗系统忽视年轻中风幸存者的经历和需求；（2）支持是零散的而非整体的；（3）在需要代理机构的时候感到无助；以及（4）尽管面临挑战，但仍持积极态度：结论：年轻中风幸存者的经历与众不同。考虑到年轻中风幸存者独特经历的医疗服务将更好地促进该群体的康复和支持。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Disability and Rehabilitation 医学-康复医学

CiteScore

5.00

自引率

9.10%

发文量

415

审稿时长

3-6 weeks

期刊介绍： Disability and Rehabilitation along with Disability and Rehabilitation: Assistive Technology are international multidisciplinary journals which seek to encourage a better understanding of all aspects of disability and to promote rehabilitation science, practice and policy aspects of the rehabilitation process.