Being a parent with a physical disability: A systematic review.

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2024-10-03 DOI:10.1037/rep0000590

Amanda Dunne, Christian Ryan

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引用次数: 0

Abstract

Purpose/objective: There is a significant gap in the literature with regards to the synthesis of qualitative research that explores the parenting experiences of parents with physical disabilities. This systematic review aims to synthesize the evidence regarding the experiences of parents with acquired and congenital physical disabilities.

Research method/design: This article presents a thematic synthesis of qualitative research carried out in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Studies were identified through searches of Cumulative Index to Nursing and Allied Health Literature, PsycINFO, PubMed, Scopus, and Web of Science databases and backward snowballing. The Critical Appraisal Skills Programme qualitative checklist was used as a quality assessment tool.

Results: Eleven articles were included in this review, and all were deemed to be high quality. Seven themes were identified: stigmatization and the need to prove competence as a parent; feeling underrepresented as a parent with a physical disability; environmental limitations; experiences of accessing support; using skills and strategies to fulfill parenting role; children's roles and reactions, and changes as they grow; and safety, wellness, and health when parenting with a physical disability.

Conclusions/implications: The findings emphasize the adaptability and resourcefulness of parents with physical disabilities in navigating environments that can be unsupportive, while continuing to prioritize their children's safety and well-being. The need for community peer-support groups and health care professionals who can provide emotional support, further public education with regards to the capabilities of parents with physical disabilities, prioritization of accessibility in public and private spaces, and the development of adapted childcare equipment, were all highlighted. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

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作为肢体残疾的父母：系统综述。

目的/目标：在对探讨肢体残疾父母养育子女经验的定性研究进行综述方面，文献资料存在很大的空白。本系统性综述旨在综合有关后天性和先天性肢体残疾父母经验的证据：本文是根据《系统综述和元分析的首选报告项目》（Preferred Reporting Items for Systematic Reviews and Meta-Analyses）指南对定性研究进行的专题综述。通过检索《护理及相关健康文献累积索引》（Cumulative Index to Nursing and Allied Health Literature）、PsycINFO、PubMed、Scopus 和 Web of Science 数据库以及后向 "滚雪球 "法来确定研究。采用批判性评价技能计划定性检查表作为质量评估工具：本综述共收录了 11 篇文章，所有文章均被视为高质量文章。确定了七个主题：作为父母的耻辱感和证明能力的需要；作为身体残疾父母的不足感；环境限制；获得支持的经历；使用技能和策略履行养育子女的职责；子女的角色和反应，以及他们成长过程中的变化；身体残疾父母的安全、健康和保健：研究结果强调了肢体残疾父母的适应能力和机智，他们可以在不支持的环境中游刃有余，同时继续优先考虑子女的安全和福祉。研究强调了社区同伴支持团体和医疗保健专业人员提供情感支持的必要性，进一步开展有关肢体残疾父母能力的公众教育，优先考虑公共和私人空间的无障碍环境，以及开发适应性儿童保育设备。(PsycInfo 数据库记录 (c) 2024 APA，版权所有。）

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.