There Is More to Life Than Walking: A Qualitative Study of Survivorship Among Peer Mentors in the Spinal Cord Injury Community.

IF 2.5 3区 工程技术 Q2 BIOLOGY
Yale Journal of Biology and Medicine Pub Date : 2024-09-30 eCollection Date: 2024-09-01 DOI:10.59249/YXEB6783
Teimur Kayani, Robert Cotter, Jonathan Sigworth, Benjamin Doolittle
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引用次数: 0

Abstract

Objective: To identify factors impacting survivorship among people living with spinal cord injury (SCI) and volunteering in a peer mentorship program. Research Method/Design: Semi-structured interviews were conducted by a leader of a non-profit organization designed to promote independent living after SCI. Questions explored intrinsic factors such as resilience and emotional coping as well extrinsic factors such as family support and accessibility challenges that impacted their SCI survivorship journey. Two independent anonymous reviewers conducted thematic analysis to identify these factors. Results: Twenty-eight members of the SCI peer mentorship program participated. Four themes affecting survivorship were identified: Sense of Achievement, Post-Injury Growth, Post-Injury Challenges, and Giving and Receiving Support. Nearly all participants focused their responses on Post-Injury Growth and Giving and Receiving Support as reasons for their interest in serving as peer mentors. Conclusions: This study highlights a need for peer community integration following SCI and underscores the importance of using a community-driven participatory model to inform and guide research. Peer mentorship programs can link SCI survivors to mentors and facilitate other sources of social fulfillment and thus can have a profound impact on individuals' survivorship post-SCI. This study identified a Sense of Achievement, Post-Injury Growth, Giving and Receiving Support, and Post-Injury Challenges as factors that most impact the SCI survivorship journey. This community leader's work underscores the importance of cognitive framing and social networks in post-injury rehabilitation in this population. Future directions include analyzing the longitudinal effects of peer mentorship participation on life satisfaction and community building in individuals living with SCI.

生活不止于行走:脊髓损伤社区同伴指导者的幸存者定性研究》。
目的确定影响脊髓损伤(SCI)患者和自愿参加同伴辅导计划的幸存者的因素。研究方法/设计:由一个旨在促进脊髓损伤后独立生活的非营利组织的领导者进行半结构式访谈。问题探讨了影响 SCI 幸存者历程的内在因素(如复原力和情绪应对)以及外在因素(如家庭支持和无障碍挑战)。两位独立的匿名评审员进行了主题分析,以确定这些因素。结果:SCI 同伴指导计划的 28 名成员参加了此次活动。确定了影响幸存者的四个主题:成就感、受伤后的成长、受伤后的挑战以及给予和接受支持。几乎所有参与者都把受伤后的成长和给予及接受支持作为他们有兴趣担任同伴导师的原因。结论本研究强调了 SCI 后同伴社区融合的必要性,并强调了使用社区驱动的参与式模式为研究提供信息和指导的重要性。朋辈导师计划可以将 SCI 幸存者与导师联系起来,并促进其他社会成就感的来源,从而对个人在 SCI 后的生存产生深远影响。这项研究发现,"成就感"、"受伤后的成长"、"给予和接受支持 "以及 "受伤后的挑战 "是对 SCI 幸存者历程影响最大的因素。这位社区领袖的工作强调了认知框架和社交网络在该人群伤后康复中的重要性。未来的研究方向包括分析同伴指导参与对 SCI 患者生活满意度和社区建设的纵向影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Yale Journal of Biology and Medicine
Yale Journal of Biology and Medicine Biochemistry, Genetics and Molecular Biology-General Biochemistry,Genetics and Molecular Biology
CiteScore
5.00
自引率
0.00%
发文量
41
期刊介绍: The Yale Journal of Biology and Medicine (YJBM) is a graduate and medical student-run, peer-reviewed, open-access journal dedicated to the publication of original research articles, scientific reviews, articles on medical history, personal perspectives on medicine, policy analyses, case reports, and symposia related to biomedical matters. YJBM is published quarterly and aims to publish articles of interest to both physicians and scientists. YJBM is and has been an internationally distributed journal with a long history of landmark articles. Our contributors feature a notable list of philosophers, statesmen, scientists, and physicians, including Ernst Cassirer, Harvey Cushing, Rene Dubos, Edward Kennedy, Donald Seldin, and Jack Strominger. Our Editorial Board consists of students and faculty members from Yale School of Medicine and Yale University Graduate School of Arts & Sciences. All manuscripts submitted to YJBM are first evaluated on the basis of scientific quality, originality, appropriateness, contribution to the field, and style. Suitable manuscripts are then subject to rigorous, fair, and rapid peer review.
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