Vanessa D Jewell, Katie J Funk, Alexis Currie, Julia Shin, Emily L Knezevich, Andrea Valdez, Maggie Bunsness
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引用次数: 0
Abstract
Background: Type 1 diabetes management for young children requires caregiver involvement to prevent serious health complications. Objectives: Explore the lived experience of rural caregivers' health management routines and perceptions of an occupation-based coaching (OBC) intervention.
Methodology: Following a 12-week, OBC telehealth intervention designed to promote diabetes management and caregiver psychosocial well-being, researchers interviewed eight rural caregivers to explore their perceived quality of life utilizing a phenomenological approach.
Findings: Three themes emerged related to caregivers' OBC intervention needs: occupational deprivation and decreased well-being; longing for connection with social supports; and desire for knowledgeable, relatable, and accessible providers. Two themes emerged related to their experiences postintervention: satisfaction with diabetes management and psychosocial support and renewed hope for childhood normalcy.
Conclusion: Despite drastic shift in family routines after a child's T1D diagnosis, caregivers reported acceptability of OBC for improving health management routines in a rural community following OBC intervention.
期刊介绍:
The aim of OTJR: Occupation, Participation and Health is to advance knowledge and science in occupational therapy and related fields, nationally and internationally, through the publication of scholarly literature and research. The journal publishes research that advances the understanding of occupation as it relates to participation and health.