Neuropsychological Late Effects and Quality-of-Life Outcomes in Pediatric Brain Tumor Survivors: Role of Pediatric Neurologists in Monitoring and Management

IF 3.2 3区医学 Q2 CLINICAL NEUROLOGY

Pediatric neurology Pub Date : 2024-09-07 DOI:10.1016/j.pediatrneurol.2024.08.014

Iris Paltin PhD, ABPP-CN , Megan Sy PsyD , Shannon M. Lundy PhD , Lauren K. Ayr-Volta PhD , Rebecca Canale MS , Grace Fong PhD, ABPP-CN , Kelly Janke PhD, ABPP-CN , Gina B. Pfeifle PhD , Thea Quinton PhD, ABPP-CN , Hannah-Lise Schofield PhD, ABPP-CN , Emily A.H. Warren PhD

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引用次数: 0

Abstract

Pediatric brain tumor (PBT) survivors are at significantly increased risk of cognitive, psychosocial, and educational/vocational sequelae that impact health-related quality of life. These complications and health morbidities result in high burden on survivors and their families, particularly those already vulnerable to disparities in health care access and outcomes. Since neurological comorbidities are common in this population, neurologists are uniquely positioned to screen, treat identified symptoms, and connect families with services and resources. A tiered assessment approach can facilitate early identification of concerns and reduce barriers to care. We review common presenting conditions, highlight risk factors, and provide screening tools and recommendations to facilitate comprehensive survivorship care for PBT survivors.

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小儿脑肿瘤幸存者的神经心理后期影响和生活质量：儿科神经学家在监测和管理中的作用

小儿脑肿瘤（PBT）幸存者出现认知、社会心理和教育/职业后遗症的风险大大增加，这些后遗症会影响与健康相关的生活质量。这些并发症和健康病症给幸存者及其家庭带来了沉重的负担，尤其是那些在获得医疗保健服务和治疗效果方面本就存在差距的家庭。由于神经系统合并症在这一人群中很常见，因此神经科医生在筛查、治疗已发现的症状以及为家庭提供服务和资源方面具有独特的优势。分层评估方法有助于及早发现问题并减少护理障碍。我们回顾了常见的症状，强调了风险因素，并提供了筛查工具和建议，以促进对 PBT 幸存者的全面护理。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Pediatric neurology 医学-临床神经学

CiteScore

4.80

自引率

2.60%

发文量

176

审稿时长

78 days

期刊介绍： Pediatric Neurology publishes timely peer-reviewed clinical and research articles covering all aspects of the developing nervous system. Pediatric Neurology features up-to-the-minute publication of the latest advances in the diagnosis, management, and treatment of pediatric neurologic disorders. The journal''s editor, E. Steve Roach, in conjunction with the team of Associate Editors, heads an internationally recognized editorial board, ensuring the most authoritative and extensive coverage of the field. Among the topics covered are: epilepsy, mitochondrial diseases, congenital malformations, chromosomopathies, peripheral neuropathies, perinatal and childhood stroke, cerebral palsy, as well as other diseases affecting the developing nervous system.