Palliative care provision for patients with decompensated advanced chronic liver disease: lessons from the South West

IF 2.4 Q3 GASTROENTEROLOGY & HEPATOLOGY

Frontline Gastroenterology Pub Date : 2024-08-15 DOI:10.1136/flgastro-2024-102778

Daniel Maggs, Emma Saunsbury, Benjamin Masterman, Ben Hudson, SPRinG Network

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Abstract

We were delighted to see specific guidance on palliative care (PC) included in the recently published British Society of Gastroenterology (BSG) best practice guidance on the outpatient management of cirrhosis.1 Decompensated advanced chronic liver disease (dACLD) carries a significant, and seldom addressed, symptom burden.2 3 PC interventions demonstrably improve physical and psychological symptoms in dACLD and do not negatively impact survival.4 Severn and Peninsula Research in Gastroenterology is a trainee research network. We undertook a retrospective regional service evaluation to assess the quality of PC provided to patients within their last year of life (LYOL) who died of dACLD in the South West of England. Specific objectives were to determine the proportion of patients with documented discussions regarding prognosis and advance care planning (ACP), and/or referral to specialist PC (SPC) services. A pre-COVID-19 patient cohort was selected to avoid the confounder of reduced outpatient services during the pandemic. Data regarding adults who died of dACLD between 1 February 2019 and 31 January 2020 were collected from electronic records. Full inclusion and exclusion criteria and statistical analysis details are outlined in online supplemental material. Documented discussions with all members …

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为失代偿期晚期慢性肝病患者提供姑息关怀：西南部的经验教训

我们很高兴看到姑息治疗（PC）的具体指导被纳入最近出版的英国胃肠病学会（BSG）肝硬化门诊治疗最佳实践指南中1 。我们进行了一项回顾性地区服务评估，以评估为英格兰西南部死于 dACLD 的患者生命最后一年（LYOL）提供的 PC 的质量。具体目标是确定对预后和预先护理计划（ACP）进行有记录讨论和/或转诊至专科PC（SPC）服务的患者比例。为了避免大流行期间门诊服务减少带来的混杂因素，我们选择了 COVID-19 之前的患者队列。从电子记录中收集了2019年2月1日至2020年1月31日期间死于dACLD的成人数据。全部纳入和排除标准以及统计分析细节见在线补充材料。与所有成员的讨论记录...

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来源期刊

Frontline Gastroenterology GASTROENTEROLOGY & HEPATOLOGY-

CiteScore

4.70

自引率

11.50%

发文量

期刊介绍： Frontline Gastroenterology publishes articles that accelerate adoption of innovative and best practice in the fields of gastroenterology and hepatology. Frontline Gastroenterology is especially interested in articles on multidisciplinary research and care, focusing on both retrospective assessments of novel models of care as well as putative future directions of best practice. Specifically Frontline Gastroenterology publishes articles in the domains of clinical quality, patient experience, service provision and medical education.