Aboriginal young people's experiences of type 2 diabetes diagnosis, management and support: A qualitative study in the Kimberley region of Western Australia.

IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Erica Spry, Kimberley Seear, Ben Harkin, Vicki O'Donnell, Louise Maple-Brown, David Atkinson, Renae Kirkham
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Abstract

Issues addressed: In Australia, Aboriginal and Torres Strait Islander young people in remote settings are most-affected by young onset type 2 diabetes (T2D). It is necessary to understand young people's experiences, including factors impacting on self-management, to improve models of care.

Methods: A phenomenological methodology underpinned this qualitative study in Western Australia's Kimberley region. Two Aboriginal Community Controlled Health Services supported recruitment of seven Aboriginal young people aged 12-24 with T2D, who participated in interviews. A carer and health professional of one young person in each site were also interviewed and relevant medical record data reviewed to assist with triangulation of data. De-identified transcripts were inductively coded and a coding structure developed with oversight by a Kimberley Aboriginal researcher.

Results: Young people reported varied experiences and emotions relating to a T2D diagnosis. Most recounted this was upsetting and some reported current negative impact on emotional wellbeing. Challenges with understanding and managing diabetes were highlighted, particularly regarding healthy eating, physical activity and medication. Family are a prominent source of self-management support, with the intergenerational impact of diabetes being evident for each participant. Positive relationships with health professionals, entailing continuity of care, were valued.

Conclusions: There are significant emotional and medical challenges for young people with T2D and their families. Recommendations from this work will contribute to the development of local resources and initiatives to improve diabetes-related support. SO WHAT?: Alongside broader efforts to support good health at the societal level, enhanced health education and family-oriented support structures including Aboriginal clinical staff for young people with T2D are needed.

原住民年轻人在 2 型糖尿病诊断、管理和支持方面的经验:西澳大利亚金伯利地区的定性研究。
解决的问题:在澳大利亚,偏远地区的土著居民和托雷斯海峡岛民年轻人受年轻发病的 2 型糖尿病 (T2D) 的影响最大。有必要了解年轻人的经历,包括影响自我管理的因素,以改进护理模式:在西澳大利亚金伯利地区开展的这项定性研究采用了现象学方法。两家原住民社区控制医疗服务机构支持招募了七名 12-24 岁患有 T2D 的原住民青少年,他们参加了访谈。每个地点还采访了一名青少年的照顾者和保健专业人员,并审查了相关的医疗记录数据,以协助对数据进行三角测量。在金伯利土著研究人员的监督下,对去身份化的记录誊本进行了归纳编码,并建立了编码结构:年轻人报告了与 T2D 诊断有关的各种经历和情绪。大多数人都说这让他们很难过,有些人还报告了目前对情绪健康的负面影响。他们强调了在理解和管理糖尿病方面所面临的挑战,尤其是在健康饮食、体育锻炼和药物治疗方面。家庭是自我管理支持的主要来源,糖尿病对每个参与者的代际影响显而易见。他们重视与医疗专业人员的积极关系,这意味着护理的连续性:患有 T2D 的年轻人及其家庭面临着巨大的情感和医疗挑战。这项工作提出的建议将有助于开发当地资源和倡议,以改善与糖尿病相关的支持。所以呢?除了在社会层面支持良好健康的更广泛努力外,还需要加强健康教育和以家庭为导向的支持结构,包括为患有 T2D 的年轻人提供土著临床工作人员。
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来源期刊
Health Promotion Journal of Australia
Health Promotion Journal of Australia PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
3.10
自引率
10.50%
发文量
115
期刊介绍: The purpose of the Health Promotion Journal of Australia is to facilitate communication between researchers, practitioners, and policymakers involved in health promotion activities. Preference for publication is given to practical examples of policies, theories, strategies and programs which utilise educational, organisational, economic and/or environmental approaches to health promotion. The journal also publishes brief reports discussing programs, professional viewpoints, and guidelines for practice or evaluation methodology. The journal features articles, brief reports, editorials, perspectives, "of interest", viewpoints, book reviews and letters.
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