Multidisciplinary Perspectives on Medical Decision-Making for Ostomy Surgery in Pediatric IBD: Themes from Focus Groups.

IF 1.6 3区心理学 Q3 PSYCHOLOGY, CLINICAL

Journal of Clinical Psychology in Medical Settings Pub Date : 2024-08-14 DOI:10.1007/s10880-024-10036-2

Jennie G David, Jennifer L Dotson, Laura Mackner

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引用次数: 0

Abstract

Pediatric Inflammatory Bowel Disease (IBD) is a chronic illness where patients may undergo ostomy surgery. Medical decision-making (MDM) for ostomy surgery is complex for patients/families and multidisciplinary healthcare professionals (HCPs) alike, with current uncertainty about how multidisciplinary HCPs think about ostomy care to inform future interventions to facilitate equitable multidisciplinary care for patients. This study sought to understand pediatric IBD multidisciplinary HCPs' perceptions regarding ostomy-related MDM and education. Multidisciplinary HCPs (e.g., gastroenterology medical providers, social workers, surgeons, and ostomy nurses) participated in semi-structured focus groups. Focus group data underwent qualitative analysis to identify themes. Three multidisciplinary focus groups were conducted, with n = 12 participants across all groups. Qualitative analysis identified three main themes, including (1) HCP perceptions of ostomies, (2) Patient/family-related factors, and (3) Professional roles and collaboration challenges. Ostomy surgery in pediatric IBD requires complex multidisciplinary MDM and education. Perspectives of multidisciplinary HCPs identified patient, HCP, and systems factors that may impact MDM for ostomy surgery. This work highlights nuances in MDM and education in IBD, and the critical role of ongoing research and improved standardized processes to coordinate multidisciplinary ostomy-related MDM and education in this population.

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小儿肠道疾病造口手术医疗决策的多学科视角：焦点小组讨论的主题。

小儿炎症性肠病（IBD）是一种慢性疾病，患者可能会接受造口手术。造口手术的医疗决策（MDM）对于患者/家属和多学科医护人员（HCPs）来说都很复杂，目前还不确定多学科医护人员如何看待造口护理，以便为未来的干预措施提供信息，促进为患者提供公平的多学科护理。本研究旨在了解儿科 IBD 多学科保健医生对造口相关 MDM 和教育的看法。多学科 HCP（如胃肠病学医疗服务提供者、社会工作者、外科医生和造口护士）参加了半结构化焦点小组。对焦点小组的数据进行了定性分析，以确定主题。共进行了三个多学科焦点小组讨论，所有小组共有 12 人参加。定性分析确定了三大主题，包括：（1）医护人员对造口的看法；（2）患者/家属相关因素；以及（3）专业角色和合作挑战。小儿 IBD 造口手术需要复杂的多学科 MDM 和教育。多学科 HCP 的观点确定了可能影响造口手术 MDM 的患者、HCP 和系统因素。这项工作强调了 IBD 中 MDM 和教育的细微差别，以及持续研究和改进标准化流程在协调该人群中与造口相关的多学科 MDM 和教育方面的关键作用。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Clinical Psychology in Medical Settings PSYCHOLOGY, CLINICAL-

CiteScore

4.00

自引率

4.50%

发文量

期刊介绍： Journal of Clinical Psychology in Medical Settings is an international forum for the publication of peer-reviewed original papers related to all areas of the science and practice of psychologists in medical settings. Manuscripts are chosen that have a broad appeal across psychology as well as other health care disciplines, reflecting varying backgrounds, interests, and specializations. The journal publishes original research, treatment outcome trials, meta-analyses, literature reviews, conceptual papers, brief scientific reports, and scholarly case studies. Papers accepted address clinical matters in medical settings; integrated care; health disparities; education and training of the future psychology workforce; interdisciplinary collaboration, training, and professionalism; licensing, credentialing, and privileging in hospital practice; research and practice ethics; professional development of psychologists in academic health centers; professional practice matters in medical settings; and cultural, economic, political, regulatory, and systems factors in health care. In summary, the journal provides a forum for papers predicted to have significant theoretical or practical importance for the application of psychology in medical settings.