A qualitative study of the ASPECT Patient Engagement Program designed to teach storytelling and advocacy skills to individuals with visual impairments and allies.

IF 1.9 4区医学 Q3 PSYCHOLOGY, CLINICAL

Rehabilitation Psychology Pub Date : 2024-08-05 DOI:10.1037/rep0000571

L Penny Rosenblum

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引用次数: 0

Abstract

Purpose/objective: This study examined the impact of the ASPECT (Advocacy, Support, Perspective, Empowerment, Communication, and Training) Patient Engagement Program on its alumni in order to understand how they used the storytelling and advocacy skills they learned, determine the strengths of the program, and identify recommendations for strengthening the program.

Research method/design: In spring 2023, eight focus groups and one interview were conducted with ASPECT Program alumni. Inductive coding was used to identify themes.

Results: Eight themes emerged and included: (a) reasons alumni joined the ASPECT Program, (b) value of combining persons with visual impairments and allies in one cohort, (c) reflections on personal growth, (d) developing and telling one's story, (e) networking with others, (f) advocacy activities, (g) strengths of the ASPECT Program, and (h) recommendations for improving the ASPECT Program.

Conclusions/implications: The ASPECT Program provided alumni the opportunity to better understand their own eye health and/or the eye health of others, learn to impactfully tell their story to diverse stakeholders, develop their advocacy skills, and network with others. The use of a training program that includes those with visual impairments and allies is an effective method for providing high-quality training to a diverse group. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

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对 ASPECT 患者参与计划的定性研究，该计划旨在向视力障碍人士及其盟友传授讲故事和宣传技巧。

目的/目标：本研究探讨了 ASPECT（倡导、支持、视角、赋权、沟通和培训）患者参与计划对其校友的影响，以了解他们如何使用所学到的讲故事和倡导技能，确定该计划的优势，并提出加强该计划的建议：2023 年春，对 ASPECT 计划的校友进行了八次焦点小组讨论和一次访谈。采用归纳编码法确定主题：出现了八个主题，包括(a) 校友加入 ASPECT 计划的原因，(b) 将视障者和盟友结合在一个团队中的价值，(c) 对个人成长的反思，(d) 发展和讲述自己的故事，(e) 与他人建立联系，(f) 宣传活动，(g) ASPECT 计划的优势，以及 (h) 改进 ASPECT 计划的建议：ASPECT 计划为校友们提供了一个机会，使他们能够更好地了解自己和/或他人的眼健康状况，学习如何向不同的利益相关者讲述自己的故事，发展他们的宣传技能，并与他人建立联系。使用包括视力障碍者和盟友在内的培训计划是为不同群体提供高质量培训的有效方法。(PsycInfo Database Record (c) 2024 APA，保留所有权利）。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Rehabilitation Psychology Multiple-

CiteScore

4.80

自引率

7.40%

发文量

期刊介绍： Rehabilitation Psychology is a quarterly peer-reviewed journal that publishes articles in furtherance of the mission of Division 22 (Rehabilitation Psychology) of the American Psychological Association and to advance the science and practice of rehabilitation psychology. Rehabilitation psychologists consider the entire network of biological, psychological, social, environmental, and political factors that affect the functioning of persons with disabilities or chronic illness. Given the breadth of rehabilitation psychology, the journal"s scope is broadly defined.