Naming hypoglycemia: a narrative tool for young people with type 1 diabetes and their families.

IF 1.3 Q4 ENDOCRINOLOGY & METABOLISM

Diabetology International Pub Date : 2024-05-27 eCollection Date: 2024-07-01 DOI:10.1007/s13340-024-00731-8

Francisco Sobral do Rosário, Marta Soares, Filipe Mesquita, João Filipe Raposo

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引用次数: 0

Abstract

Objective: Hypoglycemia constitutes a communication barrier between youth with type 1 diabetes, their family members and health professionals. A narrative tool may contribute to a more effective communication.

Methods: Semi-structured interviews with six open-ended questions using narrative techniques collect and analyze (thematic and comparative analysis) different ways of "naming" the lived experience of hypoglycemia.

Results: 103 participants, 40 with type 1 Diabetes aged 10-18 years (17 female), 63 relatives (40 female). Group 1 (G1), 10-14 years old (n = 21), Group 2 (G2), 15-18 years old (n = 19), Group 3 (G3) relatives, 30-59 years old. G3 was divided, G3.1: female (n = 42) and G3.2: male (n = 21).G1 and G2 presents greater attention to symptoms. G1 refers a greater need for help, G2 emphasizes autonomy. G2 and G3 describes better the medical protocol. G1 and G2 refer more topics such as "discomfort", "frustration", "obligation", "difficulty in verbalizing", G3 refers to "gilt", "fear" and "responsibility". G3.1 refer more "symptoms", "responsibility", "fault", "incapacity".

Conclusions: A narrative tool enhances the singularity of a common experience, proving itself useful to adolescents, relatives, and healthcare professionals.

Practice implications: In addition to gathering information that is usually acquired empirically, a narrative tool exposes knowledge gaps and may allow implementing intervention strategies.

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为低血糖命名：1 型糖尿病青少年及其家庭的叙事工具。

目的：低血糖是 1 型糖尿病患者、其家人和医疗专业人员之间的沟通障碍。叙事工具可能有助于更有效的沟通：方法：采用叙事技术，通过六个开放式问题进行半结构式访谈，收集并分析（主题分析和比较分析）"命名 "低血糖生活经历的不同方式：103 名参与者，40 名 10-18 岁的 1 型糖尿病患者（17 名女性），63 名亲属（40 名女性）。第一组（G1），10-14 岁（21 人）；第二组（G2），15-18 岁（19 人）；第三组（G3），30-59 岁。G3 分为 G3.1：女性（n = 42）和 G3.2：男性（n = 21）。G1 表示更需要帮助，G2 则强调自主性。G2 和 G3 更好地描述了医疗方案。G1 和 G2 提及更多的话题，如 "不适"、"沮丧"、"义务"、"难以用语言表达"，G3 提及 "憔悴"、"恐惧 "和 "责任"。G3.1 提及更多的是 "症状"、"责任"、"过错 "和 "能力缺失"：结论：叙事工具增强了共同经历的独特性，对青少年、亲属和医护人员都很有用：实践意义：除了收集通常通过经验获得的信息外，叙事工具还能揭示知识差距，从而实施干预策略。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Diabetology International ENDOCRINOLOGY & METABOLISM-

CiteScore

3.90

自引率

4.50%

发文量

期刊介绍： Diabetology International, the official journal of the Japan Diabetes Society, publishes original research articles about experimental research and clinical studies in diabetes and related areas. The journal also presents editorials, reviews, commentaries, reports of expert committees, and case reports on any aspect of diabetes. Diabetology International welcomes submissions from researchers, clinicians, and health professionals throughout the world who are interested in research, treatment, and care of patients with diabetes. All manuscripts are peer-reviewed to assure that high-quality information in the field of diabetes is made available to readers. Manuscripts are reviewed with due respect for the author''s confidentiality. At the same time, reviewers also have rights to confidentiality, which are respected by the editors. The journal follows a single-blind review procedure, where the reviewers are aware of the names and affiliations of the authors, but the reviewer reports provided to authors are anonymous. Single-blind peer review is the traditional model of peer review that many reviewers are comfortable with, and it facilitates a dispassionate critique of a manuscript.