Sounding out solutions: using SONAR to connect participants with relevant healthcare resources.

IF 4.7 2区 医学 Q1 COMPUTER SCIENCE, INFORMATION SYSTEMS
Carla McGruder, Kelly Tangney, Deanna Erwin, Jake Plewa, Karyn Onyeneho, Rhonda Moore, Anastasia Wise, Scott Topper, Alicia Y Zhou
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引用次数: 0

Abstract

Objective: This article outlines a scalable system developed by the All of Us Research Program's Genetic Counseling Resource to vet a large database of healthcare resources for supporting participants with health-related DNA results.

Materials and methods: After a literature review of established evaluation frameworks for health resources, we created SONAR, a 10-item framework and grading scale for health-related participant-facing resources. SONAR was used to review clinical resources that could be shared with participants during genetic counseling.

Results: Application of SONAR shortened resource approval time from 7 days to 1 day. About 256 resources were approved and 8 rejected through SONAR review. Most approved resources were relevant to participants nationwide (60.0%). The most common resource types were related to support groups (20%), cancer care (30.6%), and general educational resources (12.4%). All of Us genetic counselors provided 1161 approved resources during 3005 (38.6%) consults, mainly to local genetic counselors (29.9%), support groups (21.9%), and educational resources (21.0%).

Discussion: SONAR's systematic method simplifies resource vetting for healthcare providers, easing the burden of identifying and evaluating credible resources. Compiling these resources into a user-friendly database allows providers to share these resources efficiently, better equipping participants to complete follow up actions from health-related DNA results.

Conclusion: The All of Us Genetic Counseling Resource connects participants receiving health-related DNA results with relevant follow-up resources on a high-volume, national level. This has been made possible by the creation of a novel resource database and validation system.

找出解决方案:使用 SONAR 将参与者与相关医疗资源联系起来。
目的:本文概述了 "我们所有人 "研究计划遗传咨询资源中心开发的可扩展系统:本文概述了 "我们所有人 "研究计划遗传咨询资源部开发的一个可扩展系统,该系统可对大型医疗资源数据库进行审核,从而为获得与健康相关的 DNA 结果的参与者提供支持:在对已建立的医疗资源评估框架进行文献综述后,我们创建了 SONAR,这是一个包含 10 个项目的框架和分级表,适用于与健康相关的、面向参与者的资源。SONAR 被用于审查遗传咨询过程中可与参与者共享的临床资源:结果:应用 SONAR 将资源审批时间从 7 天缩短至 1 天。通过 SONAR 审查,约 256 项资源获得批准,8 项被拒绝。大多数获批资源与全国参与者相关(60.0%)。最常见的资源类型与支持小组(20%)、癌症护理(30.6%)和普通教育资源(12.4%)有关。我们所有的遗传咨询师在 3005 次(38.6%)咨询中提供了 1161 项经批准的资源,主要是当地遗传咨询师(29.9%)、支持团体(21.9%)和教育资源(21.0%):SONAR的系统方法简化了医疗服务提供者的资源审查,减轻了他们识别和评估可信资源的负担。将这些资源编入一个用户友好型数据库后,医疗服务提供者就可以高效地共享这些资源,使参与者能够更好地完成与健康相关的 DNA 结果的后续行动:我们所有人的遗传咨询资源 "将收到健康相关 DNA 结果的参与者与全国范围内的大量相关后续资源联系起来。新颖的资源数据库和验证系统的建立使这一目标成为可能。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of the American Medical Informatics Association
Journal of the American Medical Informatics Association 医学-计算机:跨学科应用
CiteScore
14.50
自引率
7.80%
发文量
230
审稿时长
3-8 weeks
期刊介绍: JAMIA is AMIA''s premier peer-reviewed journal for biomedical and health informatics. Covering the full spectrum of activities in the field, JAMIA includes informatics articles in the areas of clinical care, clinical research, translational science, implementation science, imaging, education, consumer health, public health, and policy. JAMIA''s articles describe innovative informatics research and systems that help to advance biomedical science and to promote health. Case reports, perspectives and reviews also help readers stay connected with the most important informatics developments in implementation, policy and education.
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