Integrated care for children and young people with special health and care needs: a systematic review.

IF 4.3 3区 医学 Q1 PEDIATRICS
Swapnil Ghotane, Raeena Hirve, Julia Forman, Daniel Tan, Zak Achercouk, Ingrid Wolfe
{"title":"Integrated care for children and young people with special health and care needs: a systematic review.","authors":"Swapnil Ghotane, Raeena Hirve, Julia Forman, Daniel Tan, Zak Achercouk, Ingrid Wolfe","doi":"10.1136/archdischild-2024-326905","DOIUrl":null,"url":null,"abstract":"<p><strong>Context: </strong>There is a dearth of high-quality evidence on integrated, coordinated and cost-effective care for children with special health and care needs (CSHCN).</p><p><strong>Objective: </strong>To assess the effectiveness of integrated/coordinated care models for CSHCN.</p><p><strong>Data sources: </strong>Embase, Ovid Medline(R), HMIC Health Management Information Consortium, Maternity & Infant Care Database (MIDIRS), PsycARTICLES, PsycINFO, Social Policy and Practice, Cochrane Central Register of Controlled Trials (CENTRAL), Global Health and PubMed.</p><p><strong>Study selection: </strong>Inclusion criteria comprised (1) randomised trials, including cluster randomised trials; (2) an integrated/coordinated care intervention; (3) for children and young people under 25 with special healthcare needs including medical complexity; (4) assessing child-centred outcomes, health-related quality of life among parents and carers, and health or social care use, processes of care and satisfaction with care.</p><p><strong>Data extraction: </strong>Data were extracted and assessed by two researchers, and descriptive data were synthesised according to outcome and intervention.</p><p><strong>Results: </strong>14 randomised controlled studies were included. Seven out of the 14 studies had a dedicated key worker/care coordinator as a vital part of the integrated/coordinated care intervention; however, the certainty of evidence for all outcomes was either 'low' or 'very low'.</p><p><strong>Limitations: </strong>Included studies were mostly from high-income countries. Variable study outcomes and quality of evidence precluded meta-analysis.</p><p><strong>Conclusions: </strong>Limited evidence favours integrated care for CSHCN using a dedicated key worker/care coordinator; however, heterogeneity in study outcomes and definitions of CSHCN limit the strength and utility of evidence obtained. Recommendations are made for improving integrated care practice, research and evaluation which are important for evidence-based health services for CSHCN.</p><p><strong>Prospero registration number: </strong>CRD42020209320.</p>","PeriodicalId":8150,"journal":{"name":"Archives of Disease in Childhood","volume":" ","pages":"924-931"},"PeriodicalIF":4.3000,"publicationDate":"2024-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11503122/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Archives of Disease in Childhood","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1136/archdischild-2024-326905","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"PEDIATRICS","Score":null,"Total":0}
引用次数: 0

Abstract

Context: There is a dearth of high-quality evidence on integrated, coordinated and cost-effective care for children with special health and care needs (CSHCN).

Objective: To assess the effectiveness of integrated/coordinated care models for CSHCN.

Data sources: Embase, Ovid Medline(R), HMIC Health Management Information Consortium, Maternity & Infant Care Database (MIDIRS), PsycARTICLES, PsycINFO, Social Policy and Practice, Cochrane Central Register of Controlled Trials (CENTRAL), Global Health and PubMed.

Study selection: Inclusion criteria comprised (1) randomised trials, including cluster randomised trials; (2) an integrated/coordinated care intervention; (3) for children and young people under 25 with special healthcare needs including medical complexity; (4) assessing child-centred outcomes, health-related quality of life among parents and carers, and health or social care use, processes of care and satisfaction with care.

Data extraction: Data were extracted and assessed by two researchers, and descriptive data were synthesised according to outcome and intervention.

Results: 14 randomised controlled studies were included. Seven out of the 14 studies had a dedicated key worker/care coordinator as a vital part of the integrated/coordinated care intervention; however, the certainty of evidence for all outcomes was either 'low' or 'very low'.

Limitations: Included studies were mostly from high-income countries. Variable study outcomes and quality of evidence precluded meta-analysis.

Conclusions: Limited evidence favours integrated care for CSHCN using a dedicated key worker/care coordinator; however, heterogeneity in study outcomes and definitions of CSHCN limit the strength and utility of evidence obtained. Recommendations are made for improving integrated care practice, research and evaluation which are important for evidence-based health services for CSHCN.

Prospero registration number: CRD42020209320.

为有特殊健康和护理需求的儿童和青少年提供综合护理:系统性综述。
背景:在为有特殊健康和护理需求的儿童(CSHCN)提供综合、协调和具有成本效益的护理方面,缺乏高质量的证据:评估针对 CSHCN 的综合/协调护理模式的有效性:数据来源:Embase、Ovid Medline(R)、HMIC 健康管理信息联合会、母婴护理数据库(MIDIRS)、PsycARTICLES、PsycINFO、社会政策与实践、Cochrane 对照试验中央登记册(CENTRAL)、全球健康和 PubMed:纳入标准包括:(1) 随机试验,包括分组随机试验;(2) 综合/协调护理干预;(3) 针对有特殊医疗保健需求(包括医疗复杂性)的 25 岁以下儿童和青少年;(4) 评估以儿童为中心的结果、父母和照护者与健康相关的生活质量,以及医疗或社会护理的使用、护理流程和护理满意度:数据提取:由两名研究人员对数据进行提取和评估,并根据结果和干预措施对描述性数据进行综合:结果:共纳入 14 项随机对照研究。14 项研究中有 7 项将专职关键工作者/护理协调员作为综合/协调护理干预措施的重要组成部分;但是,所有结果的证据确定性均为 "低 "或 "极低":局限性:纳入的研究大多来自高收入国家。研究结果和证据质量参差不齐,无法进行荟萃分析:有限的证据表明,使用专门的关键工作者/护理协调员为 CSHCN 提供综合护理是可行的;但是,研究结果和 CSHCN 定义的异质性限制了所获得证据的强度和效用。本报告提出了改进综合护理实践、研究和评估的建议,这对于为 CSHCN 提供循证健康服务非常重要:CRD42020209320。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
CiteScore
5.80
自引率
3.80%
发文量
291
审稿时长
3-6 weeks
期刊介绍: Archives of Disease in Childhood is an international peer review journal that aims to keep paediatricians and others up to date with advances in the diagnosis and treatment of childhood diseases as well as advocacy issues such as child protection. It focuses on all aspects of child health and disease from the perinatal period (in the Fetal and Neonatal edition) through to adolescence. ADC includes original research reports, commentaries, reviews of clinical and policy issues, and evidence reports. Areas covered include: community child health, public health, epidemiology, acute paediatrics, advocacy, and ethics.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信