Returning value to the community through the All of Us Research Program Data Sandbox model.

IF 4.7 2区 医学 Q1 COMPUTER SCIENCE, INFORMATION SYSTEMS
Elizabeth Cohn, Frida Esther Kleiman, Shayaa Muhammad, S Scott Jones, Nakisa Pourkey, Louise Bier
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引用次数: 0

Abstract

Objective: The All of Us Research Program aims to return value to participants by developing research capacity in communities. We describe a novel set of introductory exercises (Data Sandboxes) and specialized trainings to orient researchers to the Researcher Workbench to foster health equity research.

Materials and methods: We developed a tailored training to familiarize researchers with the All of Us Research Program: (1) orientation, (2) tailored "data treasure hunt" using the Public Data Browser, and (3) overview of the analyses tools and platform.

Results: Participants' pre- and post-knowledge of the contents and structure of the All of Us dataset scores increased significantly after training. These trainings effectively engaged researchers in exploring this rich dataset.

Conclusion: We describe ways of orienting and familiarizing a wide variety of researchers with the All of Us Research Program dataset, sparking their interest, and "jump-starting" their research.

通过 "全民研究计划数据沙盒 "模式为社区创造价值。
目标:我们所有人 "研究计划旨在通过培养社区的研究能力来回报参与者。我们介绍了一套新颖的入门练习(数据沙盘)和专门培训,以指导研究人员使用研究人员工作台,促进健康公平研究:我们为研究人员量身定制了熟悉 "我们所有人 "研究计划的培训:(1)入门指导;(2)使用公共数据浏览器进行量身定制的 "数据寻宝";(3)分析工具和平台概述:结果:参加培训的人员在培训前后对 "我们所有人 "数据集的内容和结构的了解程度明显提高。这些培训有效地吸引了研究人员探索这个丰富的数据集:我们介绍了让各类研究人员了解和熟悉 "我们所有人 "研究计划数据集、激发他们的兴趣并 "启动 "他们的研究的方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of the American Medical Informatics Association
Journal of the American Medical Informatics Association 医学-计算机:跨学科应用
CiteScore
14.50
自引率
7.80%
发文量
230
审稿时长
3-8 weeks
期刊介绍: JAMIA is AMIA''s premier peer-reviewed journal for biomedical and health informatics. Covering the full spectrum of activities in the field, JAMIA includes informatics articles in the areas of clinical care, clinical research, translational science, implementation science, imaging, education, consumer health, public health, and policy. JAMIA''s articles describe innovative informatics research and systems that help to advance biomedical science and to promote health. Case reports, perspectives and reviews also help readers stay connected with the most important informatics developments in implementation, policy and education.
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