How Digital Solutions Might Provide a World of New Opportunities for Holistic and Empathic Support of Patients with Hidradenitis Suppurativa.

IF 3.5 3区 医学 Q1 DERMATOLOGY
Dermatology and Therapy Pub Date : 2024-08-01 Epub Date: 2024-07-23 DOI:10.1007/s13555-024-01234-9
Annie Boucher, Martin Peters, Graham B Jones
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Abstract

Hidradenitis suppurativa (HS) is a complex chronic relapsing inflammatory condition anchored in the hair follicle wherein painful abscesses, nodules, and tunnels form under the skin with the potential for intermittent pus drainage and tissue scarring. Current estimates of incidence are 1-4% globally with the disease three times more prevalent in women and higher rates among Black populations. Patients with HS are also more likely to suffer from depression, anxiety, and loneliness underscoring the need for carefully approached strategies on disease awareness and interventions. Delays in formal diagnosis, which have been estimated at 7-10 years on average, impede timely provision of optimal care. Despite best intent, when patients present at a physician's office, stigmas relating to physical appearance can be exacerbated by negative interactions experienced by patients. In addition to long wait times and the dearth of available HS expert dermatology professionals, patients perceive heightened physician focus on two of the HS flare risk factors (smoking and body mass index [BMI]) as negatively impacting their care. Given the need for continual, personal, and sensitive patient support, herein we advocate for re-examination of approach to care and the leveraging of highly personalized digital support solutions. New medications which can directly or indirectly control elements of the disease and its comorbidities are also entering the marketplace. Collectively, we posit that these new developments provide opportunity for a holistic approach for patients with HS, leading to long-term engagement and improved outcomes.

Abstract Image

数字解决方案如何为化脓性扁桃体炎患者提供全面和感同身受的支持?
化脓性扁平湿疹(HS)是一种复杂的慢性复发性炎症,病变部位位于毛囊,皮下会形成疼痛的脓肿、结节和隧道,并可能间歇性排脓和形成组织瘢痕。目前估计全球发病率为 1-4%,女性发病率是男性的三倍,黑人发病率更高。HS患者也更容易患上抑郁症、焦虑症和孤独感,这突出表明有必要采取谨慎的疾病认知和干预策略。据估计,正式诊断的延迟时间平均为 7-10 年,这妨碍了及时提供最佳护理。尽管有良好的愿望,但当患者来到医生的办公室时,与外貌有关的污名可能会因患者经历的负面互动而加剧。除了漫长的等待时间和缺乏 HS 皮肤科专家外,患者还认为医生更加关注 HS 复发的两个风险因素(吸烟和体重指数 [BMI]),这对他们的护理产生了负面影响。鉴于患者需要持续、个性化和敏感的支持,我们在此提倡重新审视护理方法,并利用高度个性化的数字支持解决方案。能够直接或间接控制疾病及其并发症的新药也正在进入市场。总之,我们认为这些新进展为采用综合方法治疗 HS 患者提供了机会,从而使患者能够长期参与治疗并改善治疗效果。
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来源期刊
Dermatology and Therapy
Dermatology and Therapy Medicine-Dermatology
CiteScore
6.00
自引率
8.80%
发文量
187
审稿时长
6 weeks
期刊介绍: Dermatology and Therapy is an international, open access, peer-reviewed, rapid publication journal (peer review in 2 weeks, published 3–4 weeks from acceptance). The journal is dedicated to the publication of high-quality clinical (all phases), observational, real-world, and health outcomes research around the discovery, development, and use of dermatological therapies. Studies relating to diagnosis, pharmacoeconomics, public health and epidemiology, quality of life, and patient care, management, and education are also encouraged. Areas of focus include, but are not limited to all clinical aspects of dermatology, such as skin pharmacology; skin development and aging; prevention, diagnosis, and management of skin disorders and melanomas; research into dermal structures and pathology; and all areas of aesthetic dermatology, including skin maintenance, dermatological surgery, and lasers. The journal is of interest to a broad audience of pharmaceutical and healthcare professionals and publishes original research, reviews, case reports/case series, trial protocols, and short communications. Dermatology and Therapy will consider all scientifically sound research be it positive, confirmatory or negative data. Submissions are welcomed whether they relate to an International and/or a country-specific audience, something that is crucially important when researchers are trying to target more specific patient populations. This inclusive approach allows the journal to assist in the dissemination of quality research, which may be considered of insufficient interest by other journals. The journal appeals to a global audience and receives submissions from all over the world.
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