Using a Patient-Centered Multicriteria Decision Analysis to Assess the Value of Multiple Sclerosis Treatments in the US: A Study Protocol.

IF 2 Q2 ECONOMICS
PharmacoEconomics Open Pub Date : 2024-09-01 Epub Date: 2024-07-09 DOI:10.1007/s41669-024-00509-3
Surachat Ngorsuraches, Tim C Lai, Rebecca Habermann, Yolanda Wheeler, William Meador
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引用次数: 0

Abstract

Objective: The engagement of patients and family caregivers in value assessment is pivotal since they provide valuable contributions to assessment acceptability and relevance. The proposed study aims to use patient-centered techniques and multicriteria decision analysis (MCDA) to evaluate the values of disease-modifying therapies (DMTs) for multiple sclerosis (MS) from the perspectives of patients and family caregivers living in three 'Deep South' States of the US-Alabama, Louisiana, and Mississippi.

Methods: This study will follow guidance from the Patient-Centered Outcomes Research Institute (PCORI) for patient engagement and two best practice reports for MCDA from the Professional Society for Health Economics and Outcomes Research (ISPOR) to complete value assessment. Throughout the study, we will engage multiple stakeholders, including patients, family caregivers, healthcare providers, and payers. Forty patients with MS and their family caregivers from Alabama, Louisiana, and Mississippi will be invited to participate in this study. We will intensively train them for value assessment knowledge and MCDA before we engage them in MCDA to determine the value of DMTs for MS.

Discussions: Our approach differs from common MCDA since we incorporated a patient-centered framework in this study. Unlike previous studies only briefly inform or prepare participants before the MCDA process, in this study, we will provide basic value assessment trainings for patients and family caregivers to ensure they can effectively engage throughout the patient-centered MCDA process. We expect this study will demonstrate that the patient-centered MCDA approach is feasible and likely leads to improved patients' and family caregivers' engagement in value assessment.

使用以患者为中心的多标准决策分析评估美国多发性硬化症治疗的价值:研究方案。
目的:让患者和家庭护理人员参与价值评估至关重要,因为他们能为评估的可接受性和相关性做出宝贵贡献。拟议的研究旨在使用以患者为中心的技术和多标准决策分析(MCDA),从居住在美国三个 "深南 "州--阿拉巴马州、路易斯安那州和密西西比州--的患者和家庭护理人员的角度,评估治疗多发性硬化症(MS)的疾病改变疗法(DMTs)的价值:本研究将遵循以患者为中心的结果研究所(PCORI)关于患者参与的指导以及卫生经济学与结果研究专业学会(ISPOR)关于 MCDA 的两份最佳实践报告来完成价值评估。在整个研究过程中,我们将邀请多方利益相关者参与,包括患者、家庭护理人员、医疗服务提供者和付款人。我们将邀请来自阿拉巴马州、路易斯安那州和密西西比州的 40 名多发性硬化症患者及其家庭护理人员参与这项研究。我们将对他们进行价值评估知识和 MCDA 的强化培训,然后让他们参与 MCDA,以确定 DMTs 治疗多发性硬化症的价值:我们的方法不同于常见的 MCDA,因为我们在本研究中纳入了以患者为中心的框架。与以往的研究仅在 MCDA 过程之前对参与者进行简单的告知或准备不同,在本研究中,我们将为患者和家庭护理人员提供基本的价值评估培训,以确保他们能够有效地参与整个以患者为中心的 MCDA 过程。我们希望这项研究能证明,以患者为中心的 MCDA 方法是可行的,并有可能提高患者和家庭护理人员对价值评估的参与度。
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来源期刊
CiteScore
3.50
自引率
0.00%
发文量
64
审稿时长
8 weeks
期刊介绍: PharmacoEconomics - Open focuses on applied research on the economic implications and health outcomes associated with drugs, devices and other healthcare interventions. The journal includes, but is not limited to, the following research areas:Economic analysis of healthcare interventionsHealth outcomes researchCost-of-illness studiesQuality-of-life studiesAdditional digital features (including animated abstracts, video abstracts, slide decks, audio slides, instructional videos, infographics, podcasts and animations) can be published with articles; these are designed to increase the visibility, readership and educational value of the journal’s content. In addition, articles published in PharmacoEconomics -Open may be accompanied by plain language summaries to assist readers who have some knowledge of, but not in-depth expertise in, the area to understand important medical advances.All manuscripts are subject to peer review by international experts. Letters to the Editor are welcomed and will be considered for publication.
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