Perspectives of Chronic Kidney Disease Patients on Readiness for Advance Care Planning at Komfo Anokye Teaching Hospital, Ghana.

IF 2.5 3区 工程技术 Q2 BIOLOGY
Yale Journal of Biology and Medicine Pub Date : 2024-06-28 eCollection Date: 2024-06-01 DOI:10.59249/NZCS6192
Abigail S Boakye, Gladys Dzansi, Rasheed Ofosu-Poku, Michael O Ansah, Alfred K Owusu, Gladys Anyane, Juliana Addai, Alberta D Dzaka, Yakubu Salifu
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Abstract

This study examined the impact of advance care planning (ACP) on the quality of life for patients with chronic kidney disease (CKD) at Komfo Anokye Teaching Hospital in Ghana. It specifically investigated patients' perspectives on their readiness for ACP. Utilizing a qualitative descriptive design, one-on-one interviews were conducted with CKD patients at the renal clinic, employing a semi-structured interview guide for thematic analysis of audio data. The findings revealed a gap in understanding among CKD patients, with participants acknowledging their vulnerability to renal failure, often linked to a medical history of diabetes and hypertension. Despite recognizing potential outcomes such as dialysis dependency or death, some patients retained hope for a cure, relying on faith. The initial kidney failure diagnosis induced shock and distress, leading many patients to prefer the comfort and familiarity of home-based care, including dialysis. Meanwhile, a minority favored hospital care to protect their children from psychological trauma. Most patients deemed legal preparations unnecessary, citing limited assets or a lack of concern for posthumous estate execution. These insights emphasize the necessity for targeted education and support in ACP to enhance patient outcomes in chronic kidney disease care and end-of-life planning.

加纳 Komfo Anokye 教学医院慢性肾病患者对预先护理规划准备情况的看法。
本研究探讨了预先护理计划(ACP)对加纳 Komfo Anokye 教学医院慢性肾病(CKD)患者生活质量的影响。该研究特别调查了患者对 ACP 准备情况的看法。研究采用定性描述设计,在肾脏诊所对慢性肾脏病患者进行了一对一访谈,并使用半结构化访谈指南对音频数据进行了专题分析。研究结果表明,慢性肾功能衰竭患者对肾功能衰竭的认识存在差距,他们承认自己容易出现肾功能衰竭,这通常与糖尿病和高血压病史有关。尽管认识到透析依赖或死亡等潜在后果,但一些患者仍对治愈抱有希望,并依赖于信仰。最初的肾衰竭诊断引起了患者的震惊和痛苦,导致许多患者更倾向于舒适和熟悉的家庭护理,包括透析。同时,少数患者倾向于住院治疗,以保护子女免受心理创伤。大多数患者认为没有必要做法律准备,理由是资产有限或不关心死后遗产的处理。这些见解强调了有必要在 ACP 中开展有针对性的教育和支持,以提高慢性肾病患者的护理效果和临终规划。
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来源期刊
Yale Journal of Biology and Medicine
Yale Journal of Biology and Medicine Biochemistry, Genetics and Molecular Biology-General Biochemistry,Genetics and Molecular Biology
CiteScore
5.00
自引率
0.00%
发文量
41
期刊介绍: The Yale Journal of Biology and Medicine (YJBM) is a graduate and medical student-run, peer-reviewed, open-access journal dedicated to the publication of original research articles, scientific reviews, articles on medical history, personal perspectives on medicine, policy analyses, case reports, and symposia related to biomedical matters. YJBM is published quarterly and aims to publish articles of interest to both physicians and scientists. YJBM is and has been an internationally distributed journal with a long history of landmark articles. Our contributors feature a notable list of philosophers, statesmen, scientists, and physicians, including Ernst Cassirer, Harvey Cushing, Rene Dubos, Edward Kennedy, Donald Seldin, and Jack Strominger. Our Editorial Board consists of students and faculty members from Yale School of Medicine and Yale University Graduate School of Arts & Sciences. All manuscripts submitted to YJBM are first evaluated on the basis of scientific quality, originality, appropriateness, contribution to the field, and style. Suitable manuscripts are then subject to rigorous, fair, and rapid peer review.
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