[Validated German PROMs for People with Major Amputation of the Lower Extremity - A Narrative Review Based on the Final Report of the LEAD and COMPASS Initiative of the ISPO].

IF 1.4 4区 医学 Q3 REHABILITATION
Rehabilitation Pub Date : 2024-08-01 Epub Date: 2024-06-25 DOI:10.1055/a-2291-1343
Alexander Ranker, Bernhard Greitemann, Friedbert Kohler, Christoph Gutenbrunner, Christian Sturm, Uwe Tegtbur, Christoph Egen
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引用次数: 0

Abstract

Patient-reported outcome measures (PROMs) play an important role in the rehabilitation of people with major limb amputations. Patient-completed questionnaires help collect specific constructs on this patient population. The COMPASS and LEAD initiatives, carried out by the International Society for Prosthetics and Orthotics (ISPO), underscore the importance of regularly collecting high-quality PROMs. These are essential for the evaluation of rehabilitation needs, progress, and success. In the final report of ISPO's major international initiative, PROMs recommendations of the expert panel are tabulated. In Table 3.2 of the report, ISPO lists n=12 PROMs that were included in the narrow consensus process were considered to be of acceptable quality, and therefore recommended. The aim of this systematic review was to specifically search for these recommended PROMS regarding their availability in a German and validated version in order to identify potential gaps. All PROMs that were available in a German and validated version were then examined further with regard to the quality of the validation study, using the checklist of COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN). Through a systematic literature search, six validated German-language versions were found. Only four of these met the quality standards of the COSMIN checklist sufficiently. Overall, this review shows serious gaps in the availability in the German language of validated versions of PROMs used internationally and recommended as standard by the ISPO. This gap needs to be closed by guideline-oriented translation and subsequent validation studies in order to be able to offer and collect the PROMS recommended by the ISPO also for German-speaking patient populations.

[经过验证的德国下肢大截肢患者 PROMs - 基于 ISPO 的 LEAD 和 COMPASS 计划最终报告的叙述性回顾]。
患者报告结果测量法(PROMs)在大截肢患者的康复治疗中发挥着重要作用。由患者填写的调查问卷有助于收集这类患者的具体情况。国际修复术与矫形学会(ISPO)开展的 COMPASS 和 LEAD 计划强调了定期收集高质量 PROMs 的重要性。这对于评估康复需求、进展和成功至关重要。在 ISPO 这一重大国际行动的最终报告中,专家小组的 PROMs 建议以表格形式列出。在报告的表 3.2 中,ISPO 列出了 n=12 个 PROMs,这些 PROMs 都被纳入了狭义共识流程,被认为质量可以接受,因此被推荐使用。本次系统性回顾的目的是专门搜索这些被推荐的 PROMs,以了解它们是否有德语版本和经过验证的版本,从而找出潜在的差距。然后,我们使用基于共识的健康测量工具选择标准(COSMIN)的核对表,对所有有德文版和验证版的 PROMs 的验证研究质量进行了进一步检查。通过系统的文献检索,共找到了六个经过验证的德语版本。其中只有四种符合 COSMIN 检查表的质量标准。总体而言,本综述显示,国际上使用的并被 ISPO 推荐为标准的 PROMs 有效版本的德语版本严重不足。这一差距需要通过以指南为导向的翻译和后续验证研究来弥补,以便能够为德语患者群体提供和收集 ISPO 推荐的 PROMS。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Rehabilitation
Rehabilitation REHABILITATION-
CiteScore
0.90
自引率
11.10%
发文量
0
审稿时长
6-12 weeks
期刊介绍: Die Zeitschrift Die Rehabilitation richtet sich an Mitarbeiterinnen und Mitarbeiter in Einrichtungen, Forschungsinstitutionen und Trägern der Rehabilitation. Sie berichtet über die medizinischen, gesetzlichen, politischen und gesellschaftlichen Grundlagen und Rahmenbedingungen der Rehabilitation und über internationale Entwicklungen auf diesem Gebiet. Schwerpunkte sind dabei Beiträge zu Rehabilitationspraxis (medizinische, berufliche und soziale Rehabilitation, Qualitätsmanagement, neue Konzepte und Versorgungsmodelle zur Anwendung der ICF, Bewegungstherapie etc.), Rehabilitationsforschung (praxisrelevante Ergebnisse, Methoden und Assessments, Leitlinienentwicklung, sozialmedizinische Fragen), Public Health, Sozialmedizin Gesundheits-System-Forschung sowie die daraus resultierenden Probleme.
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