Seeking Care for Children with Intellectual and/or Developmental Disabilities in the Emergency Department: A Mixed Methods Systematic Review of Parents' Experiences and Information Needs.

IF 1.5 Q3 EMERGENCY MEDICINE
Open Access Emergency Medicine Pub Date : 2024-06-19 eCollection Date: 2024-01-01 DOI:10.2147/OAEM.S450191
Sarah A Elliott, Sholeh Rahman, Shannon D Scott, Wiliam R Craig, Lisa Knisley, Kathleen Shearer, Lisa Hartling
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Abstract

The objective of this review was to explore parents' experiences and information needs regarding management of their child with an intellectual and/or developmental disability (IDD) in the emergency department (ED). We searched six electronic databases and grey literature to identify primary studies in English published since 2000. We synthesized quantitative and qualitative outcome data simultaneously using a convergent integrated approach and used a Mixed Methods Appraisal Tool (MMAT) to assess methodological quality of the included studies. Nine articles derived from seven studies were included (3 qualitative, 3 quantitative, 1 mixed method). Four main themes related to parents' self-reported experiences were identified: 1) appropriateness of the ED to manage and support their child; 2) acknowledgement/recognition of their child's IDD and incorporation of those considerations into overall care and management; 3) managing and navigating the ED environment; and 4) decision to disclose their child's condition when visiting the ED. Two articles provided data relevant to information needs, highlighting parents' desire to have resources supporting ED orientation and access to services within and outside of the ED setting. From the limited number of studies, it was evident that parents wanted better communication with healthcare providers and a greater understanding by ED staff around physical space settings needed to support their child. Resources supporting ED staff and parents to communicate effectively and work together can ensure that children with IDDs care needs are met. Further research into understanding parents' experiences and information needs related to managing a child with an IDD in the ED is needed to guide the development of effective resources.

在急诊科为智力和/或发育障碍儿童寻求护理:对家长经历和信息需求的混合方法系统回顾》(A Mixed Methods Systematic Review of Parents' Experiences and Information Needs.
本综述旨在探讨家长在急诊科(ED)管理智力和/或发育障碍(IDD)儿童方面的经验和信息需求。我们检索了六个电子数据库和灰色文献,以确定自 2000 年以来发表的主要英文研究。我们采用聚合综合方法同时综合了定量和定性结果数据,并使用混合方法评估工具 (MMAT) 评估了纳入研究的方法质量。共纳入了 7 项研究中的 9 篇文章(3 篇定性研究,3 篇定量研究,1 篇混合方法研究)。确定了与家长自我报告的经历有关的四大主题:1) 急诊室是否适合管理和支持他们的孩子;2) 承认/认识到他们孩子的 IDD,并将这些考虑因素纳入整体护理和管理;3) 管理和驾驭急诊室环境;4) 在去急诊室就诊时决定披露他们孩子的病情。有两篇文章提供了与信息需求相关的数据,强调了家长希望有资源支持他们了解急诊室,并获得急诊室内外的服务。从数量有限的研究中可以明显看出,家长希望能与医疗服务提供者进行更好的沟通,并希望急诊室工作人员能更好地了解支持其子女所需的物理空间环境。为急诊室工作人员和家长提供有效沟通和合作的资源,可确保满足智障儿童的护理需求。需要进一步研究了解家长在 ED 管理智障儿童方面的经验和信息需求,以指导开发有效的资源。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Open Access Emergency Medicine
Open Access Emergency Medicine EMERGENCY MEDICINE-
CiteScore
2.60
自引率
6.70%
发文量
85
审稿时长
16 weeks
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