Qualitative analysis of online discussion boards for male urinary incontinence after prostate treatment

UroPrecision Pub Date : 2024-06-11 DOI:10.1002/uro2.57
Adrian M Fernandez, Behzad Abbasi, A. Sudhakar, Christine Shieh, Lindsay A. Hampson, Jason L. Lui, Umar Ghaffar, Hiren V. Patel, Nathan M. Shaw, Benjamin N. Breyer
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Abstract

Though urinary incontinence (UI) after prostate treatment often contributes to emotional distress and significantly impacts quality of life, many patients do not discuss this condition with their physicians. We analyzed the patient perspective by examining online support group posts to gain insight into specific challenges associated with different UI management methods.We examined discussion board threads from multiple patient‐focused forums on experiences of UI due to prostate treatment (threads from January 2016 to January 2022). Principles of grounded theory in thematic analysis were used to analyze the threads.Three hundred and eighteen posts from 84 unique users were analyzed. Among users, 47 (56%) reported UI following radical prostatectomy (RP), 5 (6%) secondary to radiation therapy (RT), 12 (14%) after a combination of RP and RT, and 20 (24%) were ambiguous. UI management methods included pads/diapers/liners, condom catheters/external clamps, Kegels/pelvic floor physiotherapy, and surgical treatment (artificial urinary sphincter or sling placement). We identified challenges common to all management methods: “requires trial and error,” “physical discomfort,” and “difficult to be in public.” Factors influencing management choices included the ability to “feel normal” and the development of a management routine.The current study identifies opportunities for improved expectation‐setting and education regarding post‐procedural UI and its management. These findings can serve as a guide for providers to counsel patients on the advantages and disadvantages of UI management devices.
前列腺治疗后男性尿失禁在线讨论区的定性分析
虽然前列腺治疗后出现尿失禁(UI)往往会造成情绪困扰并严重影响生活质量,但许多患者并不与医生讨论这种情况。我们通过研究在线支持小组的帖子分析了患者的观点,以深入了解与不同尿失禁管理方法相关的具体挑战。我们研究了多个以患者为中心的论坛中有关前列腺治疗后尿失禁经历的讨论板主题(主题时间为 2016 年 1 月至 2022 年 1 月)。我们分析了来自 84 位独特用户的 318 篇帖子。在用户中,47 人(56%)报告了根治性前列腺切除术(RP)后的尿失禁,5 人(6%)报告了继发于放射治疗(RT)的尿失禁,12 人(14%)报告了 RP 和 RT 联合治疗后的尿失禁,20 人(24%)报告了不明确的尿失禁。尿失禁治疗方法包括尿垫/尿布/尿布衬垫、避孕套导尿管/外夹、凯格尔(Kegels)/骨盆底物理治疗和手术治疗(人工尿道括约肌或吊带放置)。我们发现了所有治疗方法面临的共同挑战:"需要反复试验"、"身体不适 "和 "难以在公共场合出现"。影响患者选择处理方法的因素包括 "感觉正常 "的能力和日常处理方法的制定。目前的研究为改善有关术后尿失禁及其处理方法的期望设定和教育提供了机会。这些发现可作为医疗服务提供者的指南,帮助患者了解尿失禁管理设备的优缺点。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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