Self-help support: The Alzheimer's telephone from the user's perspective.

Q1 Medicine
GMS German Medical Science Pub Date : 2024-04-24 eCollection Date: 2024-01-01 DOI:10.3205/000331
Alexander Kurz, Ina Maria Fischer, Vildan Dogan, Carolin Kurz
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引用次数: 0

Abstract

Background: Telephone counseling is an important form of support for informal carers of persons with dementia. The quality and benefit of this kind of service have rarely been evaluated in Germany.

Methods: We developed a survey to assess the quality of telephone counseling. We conducted an online survey among 201 users of the telephone hotline "Alzheimer-Telefon" (Alzheimer's telephone service) provided by the German Alzheimer's Association after the consultation. The aim of the study was to determine whether this form of telephone support meets certain quality criteria and the callers' needs.

Results: Of the 201 participants, 80% were female. The mean age of the callers was 51 years. 74% of cases were one-off consultations; 26% of the callers sought advice twice or more often. The most common reasons for calling included behavioral changes (45%) and finding a nursing home (41%). Other family members were significantly (p=0.036) more likely to seek local respite options. Based on the 201 online questionnaires evaluated, most callers were highly satisfied with the counseling services provided by the Alzheimer's telephone service. Those seeking advice were particularly satisfied with the appreciative and empathetic communication style of the advisors and their professional competence. This also applies to the accessibility of the telephone. More than three quarters were fully satisfied with the information they received. Almost half of the callers were sure that the advice would help to solve their issue. 14% of people seeking advice were uncertain about how to implement the suggested solutions.A further survey would be worthwhile to determine to what extent the topics of the consultation can be implemented. The feedback from relatives who use the Alzheimer's telephone repeatedly could be used for this purpose - the repetition rate is currently 25% and the trend is rising. Results could be interesting for successful counseling and for the development of further support services.

Conclusion: The telephone hotline is a useful component of dementia care in Germany and an important contribution to the National Dementia Strategy.

自助支持:从用户角度看阿尔茨海默氏症电话。
背景:电话咨询是为痴呆症患者的非正式照顾者提供支持的一种重要形式。在德国,很少有人对这种服务的质量和益处进行评估:我们开展了一项调查,以评估电话咨询的质量。我们在咨询后对德国阿尔茨海默氏症协会提供的电话热线 "Alzheimer-Telefon"(阿尔茨海默氏症电话服务)的 201 名用户进行了在线调查。研究的目的是确定这种形式的电话支持是否符合某些质量标准和来电者的需求:在 201 名参与者中,80% 为女性。来电者的平均年龄为 51 岁。74%的病例为一次性咨询;26%的来电者寻求建议的频率为两次或两次以上。最常见的来电原因包括行为改变(45%)和寻找养老院(41%)。其他家庭成员寻求本地暂休选择的可能性明显更高(P=0.036)。根据评估的 201 份在线问卷,大多数来电者对阿尔茨海默氏症电话服务所提供的咨询服务非常满意。那些寻求建议的人尤其对咨询师赞赏和同情的沟通方式以及他们的专业能力感到满意。这也适用于电话的可及性。超过四分之三的人对他们获得的信息表示完全满意。近一半的来电者确信咨询有助于解决他们的问题。14% 的咨询者不确定如何实施建议的解决方案。重复使用阿尔茨海默氏症电话的亲属的反馈意见也可用于此目的--目前的重复使用率为 25%,且呈上升趋势。这些结果对于成功开展咨询和发展进一步的支持服务很有意义:电话热线是德国痴呆症护理的有效组成部分,也是对国家痴呆症战略的重要贡献。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
GMS German Medical Science
GMS German Medical Science Medicine-Medicine (all)
CiteScore
6.30
自引率
0.00%
发文量
10
审稿时长
11 weeks
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