"I'm still the person I am. Not the body it has become." An active but challenging life with cervical dystonia.

IF 1.6 4区医学 Q2 REHABILITATION

Physiotherapy Theory and Practice Pub Date : 2025-04-01 Epub Date: 2024-05-30 DOI:10.1080/09593985.2024.2359495

Lena Zetterberg, Ewa Niemi Andersson, Pernilla Åsenlöf, Dag Nyholm, Paul de Roos, Annika Bring

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引用次数: 0

Abstract

Background: Improvement of activity and participation for the disabled and chronically ill is an important aim of rehabilitation. Cervical dystonia is a neurological movement disorder characterized by involuntary contractions of the neck muscles. Until now, research has identified factors contributing to disability rather than factors which may make it easier to be active and participate in the community.

Objective: Explore and describe perceived experiences of activity and participation in daily life as experienced by persons with cervical dystonia.

Methods: Sixteen informants participated in this semi-structured interview study. Inductive qualitative content analysis was performed to understand and interpret experiences shared by the informants.

Results: Results from the analysis generated two themes "An active life" and "A challenging life" and six sub-themes: Using helpful coping strategies, Accepting a new life situation, Adhering to BT treatment, Facing the negative impact of stress, Experiencing a negative self-image and Suffering from pain and fatigue.

Conclusions: Our results support the importance of actions using a rehabilitation approach that consider both motor and non-motor symptoms. Future studies should compare the effects of physiotherapy taking into account wishes and challenges in patients' everyday life versus traditional physiotherapy addressing mostly the motor disorder.

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"我仍然是我自己而不是现在的身体"。活跃但充满挑战的颈肌张力障碍生活。

背景：提高残疾人和慢性病患者的活动能力和参与度是康复治疗的一个重要目标。颈肌张力障碍是一种以颈部肌肉不自主收缩为特征的神经性运动障碍。迄今为止，研究发现的都是导致残疾的因素，而不是能让患者更容易活动和参与社区活动的因素：探索并描述颈肌张力障碍患者在日常生活中的活动和参与体验：16 名受访者参与了这项半结构式访谈研究。对内容进行归纳定性分析，以了解和解释受访者分享的经验：结果：分析结果产生了两个主题 "积极的生活 "和 "充满挑战的生活 "以及六个次主题：结果：分析结果产生了两个主题 "积极的生活 "和 "充满挑战的生活"，以及六个子主题：使用有益的应对策略、接受新的生活环境、坚持 BT 治疗、面对压力的负面影响、经历消极的自我形象以及忍受疼痛和疲劳：我们的研究结果表明，采用同时考虑运动症状和非运动症状的康复方法非常重要。未来的研究应比较考虑患者日常生活中的愿望和挑战的物理治疗与主要针对运动障碍的传统物理治疗的效果。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Physiotherapy Theory and Practice REHABILITATION-

CiteScore

3.40

自引率

10.00%

发文量

300

期刊介绍： The aim of Physiotherapy Theory and Practice is to provide an international, peer-reviewed forum for the publication, dissemination, and discussion of recent developments and current research in physiotherapy/physical therapy. The journal accepts original quantitative and qualitative research reports, theoretical papers, systematic literature reviews, clinical case reports, and technical clinical notes. Physiotherapy Theory and Practice; promotes post-basic education through reports, reviews, and updates on all aspects of physiotherapy and specialties relating to clinical physiotherapy.