'Will anybody listen?' Parents' views on childhood asthma care: a qualitative study.

IF 2.5 Q2 PRIMARY HEALTH CARE
BJGP Open Pub Date : 2024-10-01 DOI:10.3399/BJGPO.2024.0070
Daniel Lange, Antje Lindenmeyer, Kate Warren, Shamil Haroon, Prasad Nagakumar
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引用次数: 0

Abstract

Background: Asthma is the most common chronic disease in children, resulting in considerable morbidity and healthcare utilisation, especially in geographical areas with high deprivation. Parents play a pivotal role in children's asthma management.

Aim: To explore the views of parents whose children have asthma, regarding barriers and facilitators to receiving adequate asthma care.

Design & setting: A qualitative study conducted in an urban, multi-ethnic setting with high socioeconomic deprivation and paediatric asthma-related hospital admissions.

Method: The study used a pragmatic approach underpinned by a perspective of critical realism. Parents of children with asthma were recruited through purposive and convenience sampling, and data were collected through semi-structured interviews. Transcripts were analysed using thematic analysis, facilitated by NVivo12 software.

Results: Ten parents participated in nine interviews. Six themes were identified relating to the following: (1) the establishment of a new life dynamic following a diagnosis of asthma; (2) the turbulent and drawn-out process of asthma diagnosis; (3) the roles and expectations of the partnership established between parents and healthcare services; (4) the importance of schools in asthma management; (5) sources and access to relevant information; and (6) the importance of social support networks. Parents frequently felt unsupported and misunderstood, particularly during the diagnostic process.

Conclusion: Unmet parental educational and emotional needs, particularly around the time of diagnosis, were identified as a key barrier to adequate asthma management. Deeper understanding of gaps in support can instruct asthma care delivery and inform co-produced interventions, thus improving asthma outcomes in children.

"父母对儿童哮喘护理的看法:定性研究 "有人会听吗?
背景:哮喘是儿童最常见的慢性疾病,导致相当高的发病率和医疗保健使用率,尤其是在贫困程度较高的地区。目的:探讨哮喘患儿家长对接受适当哮喘治疗的障碍和促进因素的看法:一项定性研究,在社会经济高度贫困、儿科哮喘相关入院率较高的城市多种族环境中进行:研究采用了以批判现实主义为基础的实用方法。通过目的性和便利性抽样招募了哮喘患儿的家长,并通过半结构化访谈收集数据。在 NVivo 软件的帮助下,采用主题分析法对访谈记录进行了分析:结果:10 位家长参加了 9 次访谈。确定了六个主题,分别涉及(1) 在确诊哮喘后建立新的生活动力;(2) 哮喘确诊过程的动荡和漫长;(3) 家长和医疗服务机构之间建立合作关系的角色和期望;(4) 学校在哮喘管理中的重要性;(5) 相关信息的来源和获取途径;(6) 社会支持网络的重要性。家长经常感到得不到支持和被误解,尤其是在诊断过程中:家长在教育和情感方面的需求得不到满足,尤其是在诊断前后,被认为是充分管理哮喘的主要障碍。深入了解支持方面的差距可以指导哮喘护理服务的提供,并为共同制定干预措施提供信息,从而改善儿童哮喘的治疗效果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
BJGP Open
BJGP Open Medicine-Family Practice
CiteScore
5.00
自引率
0.00%
发文量
181
审稿时长
22 weeks
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