Employment of disabled persons with multiple sclerosis in the Republic of Slovenia

Nana Weber, Sara Ahlin Doljak
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Abstract

Education, world work and employment are of key importance for persons with disabilities to live a life without dependency. Due to lower levels of education and their inherent limitations, persons with disabilities usually have fewer job opportunities, or find it harder to get ahead at work and are more likely to lose their jobs. They need to be made more employable through a wide range of programmes and training and their employers need to be made aware of the possibilities for workplace adjustments. Slovenian legislation makes this possible. However, persons who are not granted a disability status do not have any disability rights. The aim of this scientific article is to present the disability status of persons diagnosed with multiple sclerosis (G35, hereinafter MS), which they acquire under the various relevant legislation. The objectives of the research are to examine the existing Slovenian legislation in the field of disability and rights, the protection of persons with disabilities and the recognition of disability for persons diagnosed with MS. We examined the existing legislation and conducted a survey with 85 adult persons diagnosed with MS and who are members of the MS Association of Slovenia. The survey shows that persons with the same or similar disabilities do not have the same rights, but that these rights depend on the legal basis on which they have acquired the status of a person with disabilities. Those who acquire the status of a person with disabilities on the basis of the Vocational Rehabilitation and Employment of Persons with Disabilities Act (ZZRZI) are not entitled to disability benefits. The fragmentation of the relevant legislation should be consolidated into a single statute on the recognition of dis-ability and a single register of persons with MS should be established. Our survey shows that 85% of respondents have a recognised disability status. The figures show that 14% are full-time em-ployees, 21.2% are part-time employees, 9.4% are jobseekers and are registered with the Em-ployment Service of Slovenia (ZRSZ), 1.2% are students. There has been no previous research in the field of employment and work of persons with MS in Slovenia. Future research would be needed to monitor the impact of employment on changes in the health status of persons with MS, the extent of sickness absence, restrictions or adjustments in the workplace (e.g., shorter working hours), employment opportunities, and suitable workplaces and environments for these persons.
斯洛文尼亚共和国多发性硬化症残疾人的就业情况
教育、世界工作和就业对于残疾人过上不依赖他人的生活至关重要。由于教育水平较低和自身固有的局限性,残疾人的就业机会通常较少,或者在工作中更难出人头地,也更容易失业。需要通过广泛的方案和培训来提高他们的就业能力,并让他们的雇主了解工作场所调整的可能性。斯洛文尼亚立法使这成为可能。然而,未被授予残疾地位的人不享有任何残疾权利。这篇科学文章旨在介绍被诊断患有多发性硬化症(G35,以下简称 MS)的人根据各种相关立法获得的残疾地位。研究的目的是审查斯洛文尼亚在残疾和权利领域的现行立法、对残疾人的保护以及对确诊为多发性硬化症患者的残疾认定。我们研究了现有立法,并对斯洛文尼亚多发性硬化症协会的 85 名成年多发性硬化症患者进行了调查。调查显示,具有相同或类似残疾的人并不享有相同的权利,但这些权利取决于他们获得残疾人身份的法律依据。根据《残疾人职业康复和就业法》(ZZRZI)获得残疾人身份的人无权享受残疾津贴。应将分散的相关立法合并为一个单一的残疾认定法规,并建立一个单一的多发性硬化症患者登记册。我们的调查显示,85% 的受访者具有公认的残疾身份。数字显示,14% 为全职雇员,21.2% 为兼职雇员,9.4% 为求职者并在斯洛文尼亚就业服务机构(ZRSZ)登记,1.2% 为学生。斯洛文尼亚此前尚未对多发性硬化症患者的就业和工作情况进行研究。今后需要开展研究,监测就业对多发性硬化症患者健康状况变化的影响、因病缺勤的程度、工作场所的限制或调整(如缩短工作时间)、就业机会以及适合这些人的工作场所和环境。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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