Learning From Parents: Implementation of a Parent-Mediated Positive Behavior Support Program Targeting Challenging Behavior in Children With Autism

Z. Mestari, M. Rivard, Catherine Mello
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Abstract

Challenging behaviors (CBs) are frequently observed in children with autism spectrum disorder (ASD) and are known to have negative effects on parents’ stress and well-being, as well as on overall family quality of life. Research has shown that professional support such as the Prevent-Teach-Reinforce (PTR) program has the potential to alleviate those effects. Although several studies have empirically demonstrated this positive behavior support program in managing children’s CB, its implementation by community-based educators among parents of children with ASD has yet to be examined. This study assessed the facilitators and obstacles to this program’s implementation as perceived by 19 parents using interviews and questionnaires. Participants emphasized the significance of setting clear expectations, defining roles, and providing continuous feedback during the implementation process to promote their initiative and enhance their active participation. They recognized the difficulties of implementing the program within a family setting but emphasized the valuable presence of educators in the home, which improved their understanding of family dynamics. Parents valued effective and respectful support from educators, although some encountered disagreements during coaching sessions, highlighting the need for improved educator training with practical coaching and a greater recognition of the family’s perspective.
向家长学习:针对自闭症儿童的挑战性行为,实施以家长为主导的积极行为支持计划
自闭症谱系障碍(ASD)儿童经常会出现挑战行为(CBs),众所周知,挑战行为会对家长的压力和幸福感以及整个家庭的生活质量产生负面影响。研究表明,"预防-教育-强化"(PTR)计划等专业支持有可能减轻这些影响。虽然已有多项研究从经验上证明了这一积极行为支持计划在管理儿童 CB 方面的作用,但社区教育工作者在 ASD 儿童家长中实施该计划的情况还有待研究。本研究通过访谈和问卷调查的方式,评估了 19 位家长对该计划实施的促进因素和障碍的看法。参与者强调了在实施过程中设定明确的期望、界定角色和提供持续反馈的重要性,以促进他们的主动性并加强他们的积极参与。他们认识到在家庭环境中实施计划的困难,但也强调了教育工作者在家庭中的宝贵存在,这增进了他们对家庭动态的了解。家长们重视教育工作者提供的有效和相互尊重的支持,尽管有些家长在辅导过程中出现了意见分歧,这凸显出教育工作者需要加强培训,提供实用的辅导,并更加重视家庭的观点。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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