Mental Health Carers’ Support Experiences in Australia

Elloyse Fitzgeraldson, Jose Cuenca, Sally Fitzpatrick
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Abstract

Informal mental health carers play a crucial role in supporting individuals with depression and anxiety. However, there is a lack of knowledge on how to effectively support these carers and promote their well-being. This mixed-method study aimed to explore the support needs of carers of a person with depressive or anxiety symptoms, living in Australia. Sixty-seven carers (female 76 %, median age 48) completed an online survey, and 22 completed semi-structured interviews about their support experiences. Over half of the survey respondents reported high levels of psychological distress on the Kessler Psychological Distress Scale (K10), and 63% reported understanding and adjusting to the caregiving role as the most needed areas of support, as identified on the Caregiver Perspective Questionnaire (CPQ). Through thematic analysis of the interviews, four key themes emerged describing carers’ support experiences and needs: connecting with formal services, responding to the care-recipient, connecting socially, and caring for the self. The analysis also found that time constraints and stigma can be significant support barriers for these carers. This is the first time that a study has investigated the support experiences and needs of carers of a person with depressive or anxiety symptoms, living in Australia. The findings contribute to current literature on mental health carers and offer novel and tangible insights into future research and support opportunities.
澳大利亚精神健康照护者的支持经验
非正规心理健康照护者在支持抑郁症和焦虑症患者方面发挥着至关重要的作用。然而,对于如何有效地支持这些照顾者并促进他们的身心健康却缺乏了解。这项混合方法研究旨在探讨居住在澳大利亚的抑郁症或焦虑症患者的照护者的支持需求。67 名照护者(女性占 76%,年龄中位数为 48 岁)完成了一项在线调查,22 名照护者完成了有关其支持体验的半结构化访谈。根据凯斯勒心理压力量表(K10),半数以上的调查对象表示心理压力较大,63%的调查对象表示最需要支持的方面是理解和适应照顾者的角色,这一点在照顾者观点问卷(CPQ)中得到了确认。通过对访谈进行主题分析,得出了描述照护者支持经历和需求的四个关键主题:与正规服务机构联系、对照护对象做出回应、与社会联系以及自我照护。分析还发现,时间限制和耻辱感可能会成为这些照护者获得支持的重大障碍。这是首次对居住在澳大利亚的抑郁症或焦虑症患者的照顾者的支持经验和需求进行调查研究。研究结果为当前有关心理健康照护者的文献做出了贡献,并为未来的研究和支持机会提供了新颖而具体的见解。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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