A national postgraduate nurse practitioner and physician assistant fellowship in cystic fibrosis: An innovative approach to the provider shortage in complex and rare disease.

IF 1.2 4区 医学
Cynthia J Brady, Wendy S Looman, Jennifer L Hamilton, Jordan Dunitz, Taylor Gilard, Abraham I Sender, Cynthia George
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引用次数: 0

Abstract

Abstract: Cystic fibrosis (CF) is a complex life-limiting genetic condition that affects the respiratory, digestive, reproductive system, and sweat glands. Advances in treatment have led to improved survival and quality of life. Today, most persons with CF live to adulthood but require highly specialized care at accredited CF Care Centers. The growing and aging CF population combined with the provider workforce shortage have increased the demand for qualified CF providers. Nurse practitioners (NPs) and physician assistants (PAs) have been providing CF care for decades, but most learned on the job. The Leadership and Education for Advanced Practice Provider (LEAPP) fellowship in CF care aims to address the provider gap, ease transition to practice, and ensure access to specialized care. Unlike other institutional based joint NP/PA fellowships, LEAPP was designed to train providers at various locations across the national CF care center network. The program is innovative in several ways: (1) LEAPP employs a flipped classroom that pairs an online curriculum with case-based virtual discussion with content experts from the CF care network; (2) fellows receive mentored clinical training at their home CF center; (3) LEAPP partnered with a university-based team to ensure best practices and evaluation for adult learners; and (4) LEAPP promotes organizational enculturation through program components of professional mentoring, quality improvement, and leadership. This innovative approach may be suitable for other complex conditions that require highly specialized care, such as sickle cell disease, spina bifida, and solid organ transplant.

囊性纤维化领域的全国研究生执业护士和助理医师奖学金:解决复杂罕见疾病医疗服务提供者短缺问题的创新方法。
摘要:囊性纤维化(CF)是一种复杂的限制生命的遗传病,影响呼吸、消化、生殖系统和汗腺。治疗方面的进步提高了患者的存活率和生活质量。如今,大多数 CF 患者都能活到成年,但需要在经认可的 CF 护理中心接受高度专业化的护理。CF 人口的不断增长和老龄化,加上医疗服务人员的短缺,增加了对合格 CF 医疗服务人员的需求。执业护士(NP)和医生助理(PA)提供 CF 护理已有几十年的历史,但大多数都是在工作中学习的。CF 护理高级实践提供者领导力与教育(LEAPP)奖学金旨在解决提供者缺口问题,缓解向实践的过渡,并确保获得专业护理。与其他以机构为基础的 NP/PA 联合奖学金不同,LEAPP 的目的是在全国 CF 护理中心网络的不同地点培训提供者。该项目在以下几个方面具有创新性:(1)LEAPP 采用翻转课堂,将在线课程与 CF 护理网络的内容专家进行基于病例的虚拟讨论相结合;(2)研究人员在其所在的 CF 中心接受指导性临床培训;(3)LEAPP 与大学团队合作,确保为成人学员提供最佳实践和评估;以及(4)LEAPP 通过专业指导、质量改进和领导力等项目内容促进组织文化的融合。这种创新方法可能适用于其他需要高度专业化护理的复杂病症,如镰状细胞病、脊柱裂和实体器官移植。
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来源期刊
自引率
16.70%
发文量
172
期刊介绍: The Journal of the American Association of Nurse Practitioners (JAANP) is a monthly peer-reviewed professional journal that serves as the official publication of the American Association of Nurse Practitioners. Published since 1989, the JAANP provides a strong clinical focus with articles related to primary, secondary, and tertiary care, nurse practitioner education, health policy, ethics and ethical issues, and health care delivery. The journal publishes original research, integrative/comprehensive reviews, case studies, a variety of topics in clinical practice, and theory-based articles related to patient and professional education. Although the majority of nurse practitioners function in primary care, there is an increasing focus on the provision of care across all types of systems from acute to long-term care settings.
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