Hard to reach, or struggling to be heard? Real-life experience of coproduction with people with learning disabilities

IF 1.2 4区医学 Q3 EDUCATION, SPECIAL

British Journal of Learning Disabilities Pub Date : 2024-05-03 DOI:10.1111/bld.12600

David Dobel-Ober, Paul Moloney, Sarah Millichap

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引用次数: 0

Abstract

Background

Coproduction is a fast-developing approach to patient involvement. It entails health and social care services users working as equals in partnership with providers and other public institutions to produce novel research and information, usually aimed at the improvement of service planning and delivery.

Methods

This paper presents two real-life examples of attempted coproduction with a group of men with learning disabilities in England. The first case study concerns the piloting and assessment of a ‘user-friendly’ version of a local authority's ‘vision statement’. The second explores an attempt to secure funding to develop and evaluate a community intervention with and for people with learning disabilities.

Findings

Together, these portraits capture two important and intertwined problems that afflict the field of coproduction: namely, the drive to create fast results and the challenges of time and resource allocation that service users and professionals face whenever they attempt to coproduce work in a meaningful way.

Conclusions

The paper concludes with some suggestions for how policy and practice might seek to address these issues in the future.

查看原文本刊更多论文

难以接触，还是难以倾听？与学习障碍者共同制作的真实经验

背景合作生产是一种快速发展的患者参与方式。它要求医疗和社会护理服务的使用者以平等的身份与服务提供者和其他公共机构合作，共同开展新颖的研究和信息制作，通常旨在改善服务的规划和提供。方法本文介绍了两个与英格兰一群有学习障碍的男性尝试共同制作的真实案例。第一个案例研究涉及对地方当局 "愿景声明 "的 "用户友好 "版本进行试点和评估。结论本文最后就未来政策和实践如何解决这些问题提出了一些建议。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

British Journal of Learning Disabilities EDUCATION, SPECIAL-

CiteScore

2.30

自引率

20.00%

发文量

期刊介绍： The British Journal of Learning Disabilities is an interdisciplinary international peer-reviewed journal which aims to be the leading journal in the learning disability field. It is the official Journal of the British Institute of Learning Disabilities. It encompasses contemporary debate/s and developments in research, policy and practice that are relevant to the field of learning disabilities. It publishes original refereed papers, regular special issues giving comprehensive coverage to specific subject areas, and especially commissioned keynote reviews on major topics. In addition, there are reviews of books and training materials, and a letters section. The focus of the journal is on practical issues, with current debates and research reports. Topics covered could include, but not be limited to: Current trends in residential and day-care service Inclusion, rehabilitation and quality of life Education and training Historical and inclusive pieces [particularly welcomed are those co-written with people with learning disabilities] Therapies Mental health issues Employment and occupation Recreation and leisure; Ethical issues, advocacy and rights Family and carers Health issues Adoption and fostering Causation and management of specific syndromes Staff training New technology Policy critique and impact.