‘If you build it, they will come…to the wrong door: evaluating patient and caregiver-initiated ethics consultations via a patient portal’

IF 4.1 Q1 HEALTH CARE SCIENCES & SERVICES
Liz Blackler, Amy E Scharf, Konstantina Matsoukas, Michelle Colletti, Louis P Voigt
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引用次数: 0

Abstract

Objectives Memorial Sloan Kettering Cancer Center (MSK) sought to empower patients and caregivers to be more proactive in requesting ethics consultations. Methods Functionality was developed on MSK’s electronic patient portal that allowed patients and/or caregivers to request ethics consultations. The Ethics Consultation Service (ECS) responded to all requests, which were documented and analysed. Results Of the 74 requests made through the portal, only one fell under the purview of the ECS. The others were primarily requests for assistance with coordinating clinical care, hospital resources or frustrations with the hospital or clinical team. Discussion To better empower patients and caregivers to engage Ethics, healthcare organisations and ECSs must first provide them with accessible, understandable and iterative educational resources. Conclusion After 19.5 months, the ‘Request Ethics Consultation’ functionality on the patient portal was suspended. Developing resources on the role of Ethics for our patients and caregivers remains a priority. All data relevant to the study are included in the article or uploaded as supplementary information.
如果你建造了它,他们就会来......走错门:通过患者门户网站评估患者和护理人员发起的伦理咨询
目的 纪念斯隆-凯特琳癌症中心(MSK)希望增强患者和护理人员的能力,使他们能够更加积极主动地请求伦理咨询。方法 在 MSK 的电子患者门户网站上开发了允许患者和/或护理人员请求伦理会诊的功能。伦理会诊服务(ECS)对所有请求做出了回应,并对这些请求进行了记录和分析。结果 在通过门户网站提出的 74 项请求中,只有一项属于伦理咨询服务的范围。其他请求主要是要求协助协调临床护理、医院资源或对医院或临床团队的不满。讨论 为了更好地增强患者和护理人员参与伦理的能力,医疗机构和 ECS 必须首先为他们提供方便、易懂和可重复的教育资源。结论 在 19.5 个月后,患者门户网站上的 "请求伦理咨询 "功能被暂停。为患者和护理人员开发有关伦理作用的资源仍是当务之急。所有与研究相关的数据均已包含在文章中或作为补充信息上传。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
6.10
自引率
4.90%
发文量
40
审稿时长
18 weeks
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