The role of peer support groups in adjustment to stoma: A qualitative study

Abstract

Introduction

In Australia, access to peer support for people who have a stoma (ostomates) in a group setting, is variable and impacted by barriers such as distance and availability. The ostomate-perceived value of peer support in relation to adjustment to stoma surgery has not been previously researched. The aim of this study was to explore the experience of people who have a stoma (ostomates) and who attended a stoma peer support group. A qualitative design was used to gather insights into the ostomates’ experience.

Methods

Three focus groups were held with a total of 13 participants from an ostomy peer support group to investigate the role of this method of support in adjustment to a stoma. The qualitative data were organised using NVivo, and thematic analysis was undertaken following Braun and Clarke’s six-phase process.

Findings

Three main themes were identified: ‘being part of a group’, ‘learning from each other’, and ‘receiving support’. Six sub-themes were also identified. The findings suggest that there is a connection between adjustment to a stoma and peer-to-peer support via a support group. Being able to relate to others with a stoma helped the participants to feel normal and ultimately accepted by others. It seems likely that being part of a community of people who have a similar experience contributes positively to stoma adjustment.

Conclusion

The study findings suggest that people with a stoma benefit from participation in peer support in terms of learning, support, and connectedness gains.